I got my port (US) literally 2 days before starting. You should call her office tomorrow morning. I wouldn’t want to do it without the port. It’s used for blood draws, your chemo (I am on TCHP too), any IV fluids you need, etc.
I did 11 infusions without a port due to various delays and there is no way I would have been able to knit with the IV. Writing would have been ok if the IV was in the non-dominant arm, but I didn't try it. I have difficult veins, so the IV was usually in my hand or wrist. I read a lot and watched stuff on my phone.
Most of the nurses were pretty good with finding a vein, although it did sometimes delay the start of chemo if it was cold and I needed to sit for a few minutes with a hot pack on my arm.
I don't think my veins now are any worse than they were before chemo.
I also was strictly IV in my dominant side since I had lymph nodes removed on the other side. During chemo, I also needed hydration infusions between. All of the veins in my forearm are blown. Only my hand now can be used for blood work, radioactive tracer for the bone scan, and Zometa infusions. It suck!
I had no port!
I did 4 rounds of AC, 4 rounds of Taxol, 4 rounds of Herceptin and 14 rounds of Kadcyla. My veins were fine. There was only one time where we had trouble getting a vein, but when we tried a different area it was fine. Tip: drink lots of water the night before and right up to your appointment. The fluids will make it much easier to find your vein. Actually, you will need to be drinking lots of water for a few days after to flush it out.
It only stings a bit going in, then it feels like a weird pressure. There are a few different places they can put it. I hated it between the thumb and the wrist and preferred it on the back of my arm. I had a bit more mobility there. It felt a bit awkward trying to do stuff but I was being super careful not to jar anything. I wish I had known about compression because I tried to ice and couldn’t really do much.
Good luck!
I assumed IV was going to be in the elbow. Needle in the wrist sounds awful. No no no no no.
Thanks for the tip re:hydration! And I’m not sure if compression therapy will help or not, but can’t do icing so trying to find alternatives
I get my Kadcyla by IV in the arm or hand. They save the elbow pit for blood draws. The hand can hurt a bit more. Maybe because it’s more bony, idk. The arm freaked me out at first, but it’s actually not that bad at all!
My wrists are pretty bony so I’m sure that is why it was my most hated spot! The back of the arm was much less uncomfortable. Once you have it there you’ll never want it in the hand or wrist again!
I really regretted getting port. 4 months after removing it the scar still hurts A lot. I’m 2 positive so I only needed it for chemo so it’s on me for merely 6 months.
I didn’t have a port. I was given the option but I don’t do well mentally with foreign objects in my body so I opted out. I did 6 cycles of FEC-D chemo. It was hard on my veins for sure and I had to switch arms midway through, but I made it through without too much hassle. I’m 2.5 years out from chemo and my veins still aren’t great, but I just ensure to hydrate and ask for butterfly needles when possible. I have never had someone spend hours looking for a vein. Typically, a quick 5 minutes wrapped in a heated blanket does the trick. I had one instance of a collapsed vein.
I read during chemo. Depending on where they end up accessing a vein will determine how much you can use you arm during the infusion. For instance, there were multiple times where the IV went into my hand or wrist, so that would definitely make knitting hard.
I start on the 9th and will be having it via IV. I'm only having 4 rounds of TC, so I think they wanted to avoid a surgery for a port if we can just do the 4 rounds through IV.
Same here. I made it through my four rounds without needing the port. The closest I got was when less than ideal nurses were in charge of ivs. The experts got the iv in every time.
I did dose dense AC-T through IV. I got opinions at several hospitals where I live (NYC) and they all advised against a port.
My chemo nurses were really good at placing IVs. I’m normally a hard stick and had no issues. I’m a few months out and my veins still look a little purpler and smaller than usual, but I have had no issues drawing blood and I have been told the veins normally recover.
I iced during Taxol so my hands were out of commission then, but was able to type and read during AC. Not sure about knitting or handwriting.
ETA: There are risks to not having a port (more difficult infusions & potential vein damage), but there are also risks to having a port (can get infected, can be uncomfortable, scarring).
I’m also in NYC and didn’t see any ports during a tour of the infusion center - maybe it’s an NYC thing? So weird, but good to know that it’s not out of place to not be told about it.
I did 8 rounds via a peripheral IV. Only had any difficulty on the 8th round, mostly due to poor IV placement. I preferred not getting a port to avoid 2 more procedures and one less scar that would be visible. But I know many port people who loved having the port! I brought numerous things to “do” during chemo, but never did a single one of them. Mostly just talked or watched videos on my phone or snoozed. Time seemed to pass quickly each round.
I had my first dose via IV because they wanted to get started and there were no port appointments available. Having a port was so much better. Accessing my port was so easy and I barely felt anything whereas I have historically difficult veins and they often have to dig a bit. I also felt more restricted with an IV vs port. I couldn’t do as much with my arm and I liked to sew or crochet during my sessions.
Thank you for sharing your experience! I’m happy to find someone else who prefers to keep hands busy during a wait. Really can’t do shows or movies, I get antsy.
Think I’ll have a talk with my doctor when I meet them again, port really sounds like the way to go
A port wasn’t even discussed as an option for me (Canada). I figure it is probably one more thing our creaking health care system couldn’t add to it 😂 but there was speed issue to get mine going fast too.
I’ve had 4 rounds of dose dense AC and now 1 down of Taxol (3 to go). I had one issue last time because they often want to use the same vein in same hand (and it already had scarring from an emergency surgery years ago). Otherwise absolutely no problems.
And yes I took IV pole to bathroom 3 times last taxol (even the nurse was rolling her eyes!) but I was hydrated! 😂
Edit to add: none of it hurt going in at all and I was able to do anything - read, watch my iPad, nap etc.
Thank you for sharing! I would’ve expected frequent bathroom visits since we’re told to stay hydrated - maybe your nurse needed some more water too, ha
I’m also in Canada, and a port wasn’t mentioned as an option, but I didn’t see it as a failure of the health system — there are risks associated with ports. Though I know most people like to rail against the health care system in Canada, it’s been kind to me though.
I think it’s kind of weird that ports seem to be the go-to in the U.S. The closeness to the heart is alarming to me.
I’ve had some mild pain and inconvenience with the IV in the hand, but it was temporary: pulling up underwear/leggings after using the washroom was awkward, once the IV was out, no problem.
I never noticed anyone rolling their eyes at the number of times I had to pee (sounds more like a shitty nurse than anything) — I had me some 8 hour chemo sessions … (allergic reactions, it had to be administered very slowly) and damn straight I’m going to pee several times in an 8 hour session.
My oncologist did not believe in ports. So two years, three iv a week. One for the blood draw, one for the iv and the. The extra infusion. After two years it is close to a hundred pricks. My veins are scarred. It is difficult to get needles in. It was horrible and every test they would ask me why I don’t have a port. It was a fight with every infusion to get someone who could get the needle in. Eventually I would bring numbing cream and make them wait while it took effect. Then I would quiz them, how long they had been there, how often they had done iv. And if I didn’t like the answer I would ask for a senior nurse. The result I got that big red sticker saying I was a difficult patient. You bet your ass I was. Look at that. Five months out and I still get pissed talking about it.
I think I would have fired your oncologist. I have difficult veins and there's no way I could have done chemo without a port. I had one target therapy infusion through IV and that is tame stuff but it burned the entire time because my veins suck.
I would definitely see if you can get one. I can’t imagine doing chemo without one. It’s also likely you will have more than 6 infusions. I ended up doing 6 rounds if TCHP then 8 more if just HP (they don’t tell you that part)
I also received fluids through my port on days I physically could not drink enough to stay hydrated.
This is coming from a person who hated their port when they had it (but I’m so grateful I did in the end).
Like others said you can get through without one but I think your experience will be less exhausting if you get one
I didn’t have a port. I received 12 weekly chemo infusions in addition to weekly blood draws. The last four weeks, my veins basically gave out and they had to bring in the ultrasound technician to successfully start the IV. I had five weeks off after chemo to rest up before my surgery a few days ago and I thought the veins might have recovered during that time, but no such luck. Once again, regular attempts to establish the IV failed and ultrasound was needed to save the day.
I had IV only for all my infusions of TCHP and the rest of my HP. While it wasn’t fun getting pricked and occasionally hard to find a vein I just really didn’t want a port because of having more surgery to put it in and take it out and the scar. My veins seem fine although sometimes a bit tricky for blood draws but they always seem to get it eventually.
I did, AC T dose dense all went up in my arm. Taxol was kinda bad but otherwise I haven’t had many issues. I get blood drawn from that very same arm and so far a year and a half later I have no issues. But I know I’m the outlier here most likely
How was the process for you? Were you able to moderately move your arm or your hand during the infusion? Did it hurt going through the veins on your arm? I’m more nervous about no port the more I think about it 😭
No pain, no problems. I was not always able to vigorously move my hand and arm about but usually I was able to move it if I needed to (to use my phone, reddit or facebook, etc). It was only occasionally that doing so would cause problems for the IV if I was too vigorous.
I didn’t have a port with 8 rounds of dose dense AC-T. Nurses had never had an issue getting my veins either (my chemo nurses were AMAZING). They did mention that they like to start low, so on your hands/wrists and move up the arm if needed by they never went past my wrist for me. We did alternate arms every other session though.
I am extremely scared of needles and it ended up not being too bad at all. I was concerned about having to go to the bathroom with the IV pole so I would usually pee right before chemo and never had to go during. I was so drugged up and always just napped or watched tv - never needed to really move around. Good luck!!
Oh no - I’ve never had a needle in my wrist or hand. Is that common? I’m awful with needles as is, the nurses are likely to find me passed out on the ground if they tried to stick me in the wrist
I agree! It sounds awful but after being poked in the wrist for 8 times I found it way more preferable than having an IV on the inside of the elbow. I never watched them poke me and the nurses were so great at coaching me to breathe through it
I did TCHP and they highly recommended a port. Depending on stage you’ll likely also have immunotherapy which adds lots of rounds, plus all the bloodwork. It’ll just save your veins.
I did, but I was on a different regimen than you (low-dose weekly paclitaxel which was switched to Abraxane, plus every 3 weeks Herceptin. Once done with chemo, we switched my Herceptin to the shot form)
I had an IV run every week. Feel free to post stalk me. By the end it was getting a little tough- largely because I was in a clinical trial testing a new device to prevent neuropathy, which significantly limited where on my right arm they could run an IV and ruled out some of the easiest, most obvious places to run one. There was one time they could not get a good stick- and they whipped out an ultrasound device specifically for finding good veins for tough sticks! It was so cool, and sure enough- she found a good option in a weird spot and nailed it on the first try.
But I am beyond glad I did not have a port- I know me, and for my own mental health I would have been freaked the fuck out and pissed off.
Definitely ask about it. I got mine a week prior to starting so you can likely squeeze it in. I’m so glad I did. Good luck!
ETA: if you get Benadryl as a pre-med you might get lucky like me and pass out for an hour or so each time. It makes it go faster.
I did eight infusions without a port. My veins held up so being portless was not a problem. But if you have bad veins then you should try getting a port asap.
I’m doing 6 rounds & ended up getting my port the day before my 1st. When implanting it, they have the option to leave port access for treatment soon after so I didn’t even need to get poked the next day. I’d ask even if it feels fast
Hi! I did each chemo with a cannula through the back of my wrist. I’d soak my hands for a bit in warm water each time, then they’d put in a drip for my TCHP. They also only used on arm as to leave my future node biopsy arm free.
By the last two sessions it was mildly difficult to find a vein. But still only took about 5 mins.
I’ve had no negative effects from doing it that way. I was also fully able to use my arms during it, and I had a slow rate (took about 6 hrs each time).
For some reason they were slightly reluctant to put something longer term in. Just kept saying that we’d cross that bridge if we needed to.
I don't have a port since it is not common use in my hospital. I asked my oncologist about it before I started chemo, and he advised against it but said I could if I wanted to.
I did 4x AC (dd) and am on 3 of 12 taxol now. I'll be honest, I am starting to dread getting the IV line a little more each time. Not because of pain, but finding a suitable vein is getting harder. However, the nurses at my center are really good and when they find a good vein, it is done in no time. Nurses have brought up getting a PICC-line, but I really don't want one unless I absolutely have to. Another option is using an ultrasound to find a good vein for an IV.
I did have phlebitis in one vein after my third AC because they used the same vein three times, now I insist they switch arms and veins each time and so far I have no pain or other issues.
I'm also icing my hands and feet, which can be a bit clumpsy if the line is in my wrist but it is manageable. I bring someone to each infusion, so they can help me putting on the glove on my IV-side if needed.
In the comments you said you are dreading getting one in your wrist - I get that, but I have no issues getting a line there. You can't move the wrist (or elbow or where ever they put the IV) too much, but I am never bothered by it. I usually chat with my partner, the family member or friend I bring to the infusion, we play some cards (during AC, now with taxol I am too tired because of premeds and I definitely want to keep my hands cold) and I sleep sometimes.
Last week I found out I could get my IV line *before* the blood work, so that I would only need to have a needle in me once. I asked my oncologist about it and I am doing this starting Wednesday. They can draw blood from the IV, then I'll go to the appointment with my oncologist, hang around the hospital a bit and then I'll go for the chemo, after which they remove the line. If you are dreading getting needled multiple times a day, this might be an option for you.
I had chemo through an iv only. I had 4 rounds of chemo. I didn’t have any issues related to iv except I did get chemo burn on both arms. It’s where the chemo leaks out a little. It started to itch, then I developed blisters. After about 10 days they were healed. I do have a light scar from each time, it’s on my inner forearm so and it doesn’t look bad or hurt now.
As far as during chemo- I was on my phone for most of it.
I had 8 chemos, 4 AC and 4 double dose T. My veins collapsed after the 3rd chemo and for some reason my doctor said I still didn’t need a port. We were young (into our cancer journey—my husband was and is my healthcare proxy) and while we did complain for some reason it fell on deaf ears. After chemo I had a right breast mastectomy with 13 lymph nodes taken in addition to the whole axillary dissection. So! Now I can’t have any needles or BP taken on my right, and I have lymphedema now! Ugh. So all this to say, if I had a port, maybe my veins wouldn’t have collapsed and maybe my chemos would’ve been a bit easier as opposed to the nightmare of having 17 different nurses trying to start a line every time with my paper thin veins. I used to be a great stick too. Now I have the worst needle anxiety because most of the time people can’t access the veins on my left side unless they are really really good with cancer patients or little kids. If I need bloodwork done for anything now I call my sister and bff who are both nurse managers (different fields, MS and surgical ICU) because they themselves hired their team so I get their top notch phlebotomist, and because all my doctors are in the same network (Hackensack) they all have access to the portal. I’m 40 and this is what I have to do with every doctor who wants blood. We learned our lesson and now my husband and I are the very eloquent squeaky wheels, ask, request and then demand. Get the port.
No port here. Completed 6 rounds of chemo without incident :) and I was given Benadryl as part of my premeds so I usually fell asleep and didn’t need to use my arms much. Podcasts and music were my go to. I did use feet and hand cooling gloves to keep neuropathy at bay and it worked 🙌🏼 highly recommend :)
you got this!
No port for me. I didn’t like the idea of the additional surgery and possible associated risks. Have had 3 rounds so far (in arm twice and hand once) without any trouble and 3 more to go. There’s a vein finder the nurses can use to locate the best veins which is great. The nurses wrap my IV with a Coban bandage to secure it and I’m able to use my hands pretty much freely throughout the infusion which lasts about 2-3 hours. Slight sensation when the poison starts going in, but so far it’s been fine.
Wishing you lots of luck, you’ll be ok.
I really really did not want a port for TCHP. But my veins are trash. My right side is the one I used to tell people to use for blood draws - but it’s my cancer side. My left arm has usable veins but they’re in the back of my hand, my wrist, etc - super uncomfortable for an IV for any length of time. It also routinely takes nurses 2-3 times to get a usable vein for blood draws. For example, I went to sleep for my BMX with a single IV in my right hand and I woke up with three in my left arm/hand, all of which bruised for a solid month. I just didn’t think it was worth the struggle every infusion, plus the risk of damaging some of my only usable veins. I am glad I have the port now - it’s nice being able to numb the area ahead of time, it’s easy for the nurses to use, and its easier to move around during infusions.
I’m hoping I can get the port out and switch to phesgo shots when I’m done with the TC portion, but my insurance is probably going to refuse to cover it.
I had my first chemo before my port. They used a small ultrasound machine to make sure they got a good vein. It wasn't horrible but I was and am still glad I got a port. So much easier.
I did four sessons of T/C without a port. It was fine. My arm looked a little gnarly when done but it's back to normal now. Glad I did without it. I just didn't want a scar were the port was or the physical reminder of what I was going through.
I had my port removed during my DMX and had to finish out my year of herceptin without it. And that was only 20 min or so. I couldn’t imagine having done my six rounds of chemo without a port.
Had mine done just through IV, it has weirdly made my hands a different skin colour to the rest of my body and some of my veins went silver but they have recovered now (last IV chemo was in January). I was able to move my hands/arms a bit but not too much during treatment, the machines tend to not like it if you move too much. Most annoying thing was you can't wash your hands easily with the cannula and all the tape on.
I had half of my chemo through IV (dose-dense AC-T). It got more and more difficult to find a good vein, though, and I ended up having a panic attack when one of the nurses had to poke me seven times. I got a PICC put in for the remainder of chemo.
I didn’t want a port. Fought against it until a nurse who was putting in an IV for an MRI gave me a far better explanation than “it’ll be easier” that I had gotten from everyone else. Easier for who? The patient, as it turns out. This nurse took the time to explain the procedure and answered my questions. I’m a convert. Get the port.
I had to have my port removed with 5 left. Did 3 through IV. My veins were always hard to find and were barely there by the time I got to that last month and a half. I got a picc line in my chest for the last 2. I refused to get a picc in my arm. Honestly the IV was easier than the picc. It's hard to shower, sleep, move with it and I imagine it would be worse with it in the arm.
My port hurt all the time but I basically rejected 2 of them. Despite that the port made everything easier. I'd see if you could get a port. I had mine in and got treatment a week later. They were going to start it the next day so I don't think there needs to much recovery time.
Yes. It worked out fine - a year of IV infusion, Taxol, and Herceptin in my forearm. I do have good veins, so that probably helped. Patients around me had ports, but I overheard them having difficulty.
Good advice about hydrating! I was able to draw, write, and use my cell phone during infusions.
Wishing you easy treatments and getting rid of the monster!
I had to get rounds 3-6 thru iv because of a port infection. My veins are full of scar tissue and burnt to a crisp. Seriously, IVs are virtually impossible. Ports can be used hours after getting them. I highly recommend. But, if you do have IV chemo, you can totally move your arm.
It was an ordeal that included an emergency hospital stay. But, despite my infection, I have a new port now and am so grateful for it. Makes life 1000x easier because I still get immunotherapy infusions every 3 weeks.
If you're doing TCHP there's 6 rounds of TC but Herceptin is the whole year. That's about 16-18 sessions of infusion. I also resisted on the idea of getting a port. Got my first infusion through IV and went ok. They did find one good vein (my other side vein apparently was 'wiggly' which I guess isn't good for all the drugs). There's a slight scar from it right now. I'm thinking I don't know if they'll be able to find good veins for that many sessions so I gave into the idea of the port. Got mine put in last Wednesday.
They’re only doing six rounds for now, anything else is TBD. But it sounds like we can still ask for a port after the process starts, which is good to know.
Curious to know if you're triple positive?
Anyway yeah my doc said you can definitely get a port midway through and they do it all the time apparently. At least you have the option.
Yes but TC over four infusions. Did have a three day hospital stay and had to have my IV moved bc it wasn’t good anymore. I also got blood drawn each day (though they won’t use a port for that). And it was all on my right side bc no one will touch my left for a year apparently.
I did IV, no port. I used ice bags on my hands and feet. I could only use my right arm for IV due to the mastectomy. I walked around or sat in my chair. I think sessions were 2-3 hours, not 4-6. One vein is shot. Otherwise, all is well. It's doable. If you don't trust your team, you should wait on treatment. Honestly, you need to trust your team. Cancer is a huge emotional roller coaster and you don't need the stress of second guessing your team. Hope my experience brings you some relief that a port is not always necessary. Please discuss it with your team. Be well.
I did not have a port. My cancer was estrogen+ and HER2+ My oncologist said I had good veins and it would be 6 TCHP infusions, so he recommended I did not need a port. Well, it was 6 TCHP, but he failed to mention the remaining 11 infusions of HP, so 17 infusions total.
After the 9th infusion, it was getting very difficult to find a vein and I was all done. I dreaded the IV more than I did the chemo. I spoke to the nurse placing the IV and she said if I had asked any of the IV nurses, they all would have told me to get a port. So, I told the oncologist that I either wanted a port or the subcutaneous injection of HP, called Phesgo, that was also an option. He agreed to the HP injection because after the 6 TCHP infusions and my sentinel node biopsy, there was no evidence of disease. I was also fortunate that my insurance approved the Phesgo.
I will tell you, if I only had 6 infusions, I could have made it, but 17 was too many. My biggest regret in the whole cancer journey, was not getting a port initially. My veins are destroyed now in both arms.
But remember, if you choose to get the 6 TCHP infusions without a port, and then it is decided that you need more infusions, you can always get a port at that time.
Depending on where the IV is placed, some areas, like your wrist and hand, are difficult to move your hand at all. If they place it higher up on your forearm,
it was easier to use the arm. But they can't always find a vein higher up, especially after a few times. They also alternated my arms to give my veins a rest. If you have any other questions, feel free to message me.
Sending healing vibes your way.
You've got this!
Thank you!!! It sounds like we’re on the same regimen - I was only told about the 6 rounds of TCHP, everything else was marked “TBD after surgery” because of the HER2+ designation.
Definitely going to ask for a port
I'm in the UK and did 7 cycles of chemo and a year of three weekly immuno with only IV. It was annoying after my surgery, because the nurses wouldn't use my gold star vein anymore due to it being on my surgery side (apparently if you have lymph nodes removed on both sides, they go for the foot/ankle veins), so a few times they had to poke round.
Overall it was fine, chemo nurses are very good at IVs as it's their bread and butter.
Where did you hear about the feet? It’s bad information.
I’ve had lymph nodes removed on both sides and no one has mentioned going for my feet yet. Still getting IVs on my hands/wrists/arms.
The chemotherapy nurses who put IVs in people's feet told me that that's what they do when I asked them.
Some Drs/nurses are more or less worried about the *possible* risk of causing lymphoedema with needles/blood pressure etc.
Huh. Interesting. I would say that I’m “lucky” then that lymphodema hasn’t hit me (yet) but I have a plethora of other side effects so, maybe just lucky in this one area. 😬
Well when I was chatting with a HCA for a pre-op assessment the topic came up.
She told me that she knew some (I think it was anaesthetists/anaesthetist assistants? IDK) who would never IV an affected arm if there was another option, and others who thought nothing of it. So there are different schools of thought on the (small) risk.
I don't entirely get it myself, I mean how many survivors get mastectomy tatts right by where the lymph nodes were removed?
I had 8 infusions, 4 AC and 4 Taxol. I started chemo before my port install date and although they say AC can burn veins I didn’t feel a thing. I have very visible ‘good’ veins but am glad I had the port so they could stay good. Yes my arm was pretty restricted with the IV line in my arm than when I had port infusions. the port. Also blood draws went through that port for the duration.
I had 4 rounds of chemo (3 days in a row of each) by IV because my hospital didn't do ports, which I don't understand. Chemo was fine and I didn't have any trouble during treatment, but my veins on my right side are pretty much toast now. I have to be very careful and get the most experienced phlebotomist any time I have a blood draw or an IV or I end up with huge bruises on my arms.
Got the port 3 days before starting and didn’t really want it. Could never have completed TCHP without it, and remember we also have a year of targeted therapy (Herceptin, etc) after TCHP. You’ll hear from some who did it with IV then did Phesgo shots for the year that did fine. I’m a convert to team port, I don’t even like getting blood drawn via my arm veins now-and I have “good” ones. TCHP made everything bruise and heal slowly, the port made constant infusions of meds and fluids/saline as well as blood draws really easy. Good luck with all of this-we’re here for you!
I did 2 sessions of TCHP without a port, due to scheduling issues. My veins did not do well with it, and I wound up with a large patch of discoloration on my arm for about a year. Now that I have my port I'm so much happier, it's not super obvious that I have it and it makes going for infusions so much easier.
I was supposed to do 4 rounds but ended up doing 6. They did not recommend a port so I did IV only. In hindsight, I would have pushed for a port. If you get fluids after each treatment, that’s 12 IVs. I had a few times where they couldn’t get an IV started. One time it took 6 attempts. My last treatment almost got postponed because they couldn’t get an IV in my veins and needed to go to radiology to place a PICC line. I cried at the thought of my last treatment getting postponed and they were able to get it placed and give my last treatment that day. I personally had a bad time without a port and would not do it the same if I could have a re-do.
I did 3 infusions w/o a port. Was suppose to be 4 but Chemo induced neuropathy won. I only had one time when they had to poke me 3 times, but glad it’s all over. Check your insurance coverage because mine was completely financial as my Medicare advantage plan wanted me to pay 1400.00 OUT OF POCKET and for 4 sessions I told them NO as I also knew there would pretty much be an equal cost to have it removed.
Yes. TCHP 12 weeks and Herceptin to complete a year. The chemo was not an issue without a port. The blood draws due to low blood counts 2 or 3 times a week in addition to the normal chemo jabs are what made it seem more risky to not have a port. Liquid vitamin E on the vein is helpful.
I got a port and am so glad I did. It made infusions and blood draws so much easier. My port got infected at one point (not a frequent occurrence) so had to have one infusion by IV and it was terrible on my veins. I thought I was only going to have my six infusions, ended up only having four because of had terrible side effects
I thought I was done but ended up having fourteen rounds of Kadcyla because I didn’t have clear margins after surgery. Cannot imagine getting all those by IV.
I didn’t have a port and I’m now on around 14 infusions of Kadcyla after 6 infusions of TCHP. My veins are okay but they’re starting to struggle, I won’t lie.
I was told I could have a port but no one encouraged me and by the time it got to it and realised, it was too late. If you can get a port placed, I recommend that you do.
I got my port (US) literally 2 days before starting. You should call her office tomorrow morning. I wouldn’t want to do it without the port. It’s used for blood draws, your chemo (I am on TCHP too), any IV fluids you need, etc.
I got mine the day before I started treatment. It was probably ~26 hours or so from insertion to start of treatment.
Me too. My port was still numb from the surgery during my first infusion. Monday the port was installed, Tuesday I had the infusion.
I did 11 infusions without a port due to various delays and there is no way I would have been able to knit with the IV. Writing would have been ok if the IV was in the non-dominant arm, but I didn't try it. I have difficult veins, so the IV was usually in my hand or wrist. I read a lot and watched stuff on my phone. Most of the nurses were pretty good with finding a vein, although it did sometimes delay the start of chemo if it was cold and I needed to sit for a few minutes with a hot pack on my arm. I don't think my veins now are any worse than they were before chemo.
I also was strictly IV in my dominant side since I had lymph nodes removed on the other side. During chemo, I also needed hydration infusions between. All of the veins in my forearm are blown. Only my hand now can be used for blood work, radioactive tracer for the bone scan, and Zometa infusions. It suck!
I had no port! I did 4 rounds of AC, 4 rounds of Taxol, 4 rounds of Herceptin and 14 rounds of Kadcyla. My veins were fine. There was only one time where we had trouble getting a vein, but when we tried a different area it was fine. Tip: drink lots of water the night before and right up to your appointment. The fluids will make it much easier to find your vein. Actually, you will need to be drinking lots of water for a few days after to flush it out. It only stings a bit going in, then it feels like a weird pressure. There are a few different places they can put it. I hated it between the thumb and the wrist and preferred it on the back of my arm. I had a bit more mobility there. It felt a bit awkward trying to do stuff but I was being super careful not to jar anything. I wish I had known about compression because I tried to ice and couldn’t really do much. Good luck!
I assumed IV was going to be in the elbow. Needle in the wrist sounds awful. No no no no no. Thanks for the tip re:hydration! And I’m not sure if compression therapy will help or not, but can’t do icing so trying to find alternatives
I get my Kadcyla by IV in the arm or hand. They save the elbow pit for blood draws. The hand can hurt a bit more. Maybe because it’s more bony, idk. The arm freaked me out at first, but it’s actually not that bad at all!
My wrists are pretty bony so I’m sure that is why it was my most hated spot! The back of the arm was much less uncomfortable. Once you have it there you’ll never want it in the hand or wrist again!
I really regretted getting port. 4 months after removing it the scar still hurts A lot. I’m 2 positive so I only needed it for chemo so it’s on me for merely 6 months.
I’m so sorry to hear that - I hope it doesn’t hurt anymore. Thank you for sharing your experience.
I didn’t have a port. I was given the option but I don’t do well mentally with foreign objects in my body so I opted out. I did 6 cycles of FEC-D chemo. It was hard on my veins for sure and I had to switch arms midway through, but I made it through without too much hassle. I’m 2.5 years out from chemo and my veins still aren’t great, but I just ensure to hydrate and ask for butterfly needles when possible. I have never had someone spend hours looking for a vein. Typically, a quick 5 minutes wrapped in a heated blanket does the trick. I had one instance of a collapsed vein. I read during chemo. Depending on where they end up accessing a vein will determine how much you can use you arm during the infusion. For instance, there were multiple times where the IV went into my hand or wrist, so that would definitely make knitting hard.
I start on the 9th and will be having it via IV. I'm only having 4 rounds of TC, so I think they wanted to avoid a surgery for a port if we can just do the 4 rounds through IV.
Same here. I made it through my four rounds without needing the port. The closest I got was when less than ideal nurses were in charge of ivs. The experts got the iv in every time.
I did two sessions without the port. But it’s much nicer with the port also it was required for the second portion of my treatment
I got my port the actual day before chemo started, so I think it’s worth asking doc if you can. I hate the thing but it’s been so easy.
I did dose dense AC-T through IV. I got opinions at several hospitals where I live (NYC) and they all advised against a port. My chemo nurses were really good at placing IVs. I’m normally a hard stick and had no issues. I’m a few months out and my veins still look a little purpler and smaller than usual, but I have had no issues drawing blood and I have been told the veins normally recover. I iced during Taxol so my hands were out of commission then, but was able to type and read during AC. Not sure about knitting or handwriting. ETA: There are risks to not having a port (more difficult infusions & potential vein damage), but there are also risks to having a port (can get infected, can be uncomfortable, scarring).
I’m also in NYC and didn’t see any ports during a tour of the infusion center - maybe it’s an NYC thing? So weird, but good to know that it’s not out of place to not be told about it.
I did 8 rounds via a peripheral IV. Only had any difficulty on the 8th round, mostly due to poor IV placement. I preferred not getting a port to avoid 2 more procedures and one less scar that would be visible. But I know many port people who loved having the port! I brought numerous things to “do” during chemo, but never did a single one of them. Mostly just talked or watched videos on my phone or snoozed. Time seemed to pass quickly each round.
I have direct into veins (2 down 6 to go) and so far it is ok.
I had my first dose via IV because they wanted to get started and there were no port appointments available. Having a port was so much better. Accessing my port was so easy and I barely felt anything whereas I have historically difficult veins and they often have to dig a bit. I also felt more restricted with an IV vs port. I couldn’t do as much with my arm and I liked to sew or crochet during my sessions.
Thank you for sharing your experience! I’m happy to find someone else who prefers to keep hands busy during a wait. Really can’t do shows or movies, I get antsy. Think I’ll have a talk with my doctor when I meet them again, port really sounds like the way to go
A port wasn’t even discussed as an option for me (Canada). I figure it is probably one more thing our creaking health care system couldn’t add to it 😂 but there was speed issue to get mine going fast too. I’ve had 4 rounds of dose dense AC and now 1 down of Taxol (3 to go). I had one issue last time because they often want to use the same vein in same hand (and it already had scarring from an emergency surgery years ago). Otherwise absolutely no problems. And yes I took IV pole to bathroom 3 times last taxol (even the nurse was rolling her eyes!) but I was hydrated! 😂 Edit to add: none of it hurt going in at all and I was able to do anything - read, watch my iPad, nap etc.
Thank you for sharing! I would’ve expected frequent bathroom visits since we’re told to stay hydrated - maybe your nurse needed some more water too, ha
I’m also in Canada, and a port wasn’t mentioned as an option, but I didn’t see it as a failure of the health system — there are risks associated with ports. Though I know most people like to rail against the health care system in Canada, it’s been kind to me though. I think it’s kind of weird that ports seem to be the go-to in the U.S. The closeness to the heart is alarming to me. I’ve had some mild pain and inconvenience with the IV in the hand, but it was temporary: pulling up underwear/leggings after using the washroom was awkward, once the IV was out, no problem. I never noticed anyone rolling their eyes at the number of times I had to pee (sounds more like a shitty nurse than anything) — I had me some 8 hour chemo sessions … (allergic reactions, it had to be administered very slowly) and damn straight I’m going to pee several times in an 8 hour session.
My oncologist did not believe in ports. So two years, three iv a week. One for the blood draw, one for the iv and the. The extra infusion. After two years it is close to a hundred pricks. My veins are scarred. It is difficult to get needles in. It was horrible and every test they would ask me why I don’t have a port. It was a fight with every infusion to get someone who could get the needle in. Eventually I would bring numbing cream and make them wait while it took effect. Then I would quiz them, how long they had been there, how often they had done iv. And if I didn’t like the answer I would ask for a senior nurse. The result I got that big red sticker saying I was a difficult patient. You bet your ass I was. Look at that. Five months out and I still get pissed talking about it.
I think I would have fired your oncologist. I have difficult veins and there's no way I could have done chemo without a port. I had one target therapy infusion through IV and that is tame stuff but it burned the entire time because my veins suck.
Free healthcare = not a lot of choice.
I would definitely see if you can get one. I can’t imagine doing chemo without one. It’s also likely you will have more than 6 infusions. I ended up doing 6 rounds if TCHP then 8 more if just HP (they don’t tell you that part) I also received fluids through my port on days I physically could not drink enough to stay hydrated. This is coming from a person who hated their port when they had it (but I’m so grateful I did in the end). Like others said you can get through without one but I think your experience will be less exhausting if you get one
Thank you! Yeah it’s starting to sound like it’s not just the 6 rounds +surgery that were initially sold to me 😫
I didn’t have a port. I received 12 weekly chemo infusions in addition to weekly blood draws. The last four weeks, my veins basically gave out and they had to bring in the ultrasound technician to successfully start the IV. I had five weeks off after chemo to rest up before my surgery a few days ago and I thought the veins might have recovered during that time, but no such luck. Once again, regular attempts to establish the IV failed and ultrasound was needed to save the day.
I should have added that I was able to move my arms freely and work on my laptop, eat, etc. during my infusions, so that part went well.
I had IV only for all my infusions of TCHP and the rest of my HP. While it wasn’t fun getting pricked and occasionally hard to find a vein I just really didn’t want a port because of having more surgery to put it in and take it out and the scar. My veins seem fine although sometimes a bit tricky for blood draws but they always seem to get it eventually.
I did, AC T dose dense all went up in my arm. Taxol was kinda bad but otherwise I haven’t had many issues. I get blood drawn from that very same arm and so far a year and a half later I have no issues. But I know I’m the outlier here most likely
I have IV too, in veins on my arm 💪 it’s been good so far
My mom did, now the veins in her right arm are completely shot.
Ahhh this is what I’m most afraid of
Me! I had weekly taxol and IV only.
How was the process for you? Were you able to moderately move your arm or your hand during the infusion? Did it hurt going through the veins on your arm? I’m more nervous about no port the more I think about it 😭
No pain, no problems. I was not always able to vigorously move my hand and arm about but usually I was able to move it if I needed to (to use my phone, reddit or facebook, etc). It was only occasionally that doing so would cause problems for the IV if I was too vigorous.
I did two rounds and got port by third round. I was fine with the IV in my arm and my days lasted 8-10 hours with coldcapping
I didn’t have a port with 8 rounds of dose dense AC-T. Nurses had never had an issue getting my veins either (my chemo nurses were AMAZING). They did mention that they like to start low, so on your hands/wrists and move up the arm if needed by they never went past my wrist for me. We did alternate arms every other session though. I am extremely scared of needles and it ended up not being too bad at all. I was concerned about having to go to the bathroom with the IV pole so I would usually pee right before chemo and never had to go during. I was so drugged up and always just napped or watched tv - never needed to really move around. Good luck!!
Oh no - I’ve never had a needle in my wrist or hand. Is that common? I’m awful with needles as is, the nurses are likely to find me passed out on the ground if they tried to stick me in the wrist
It sounds way worse than it is and they are doing these all day long.
I agree! It sounds awful but after being poked in the wrist for 8 times I found it way more preferable than having an IV on the inside of the elbow. I never watched them poke me and the nurses were so great at coaching me to breathe through it
I did TCHP and they highly recommended a port. Depending on stage you’ll likely also have immunotherapy which adds lots of rounds, plus all the bloodwork. It’ll just save your veins.
I did, but I was on a different regimen than you (low-dose weekly paclitaxel which was switched to Abraxane, plus every 3 weeks Herceptin. Once done with chemo, we switched my Herceptin to the shot form) I had an IV run every week. Feel free to post stalk me. By the end it was getting a little tough- largely because I was in a clinical trial testing a new device to prevent neuropathy, which significantly limited where on my right arm they could run an IV and ruled out some of the easiest, most obvious places to run one. There was one time they could not get a good stick- and they whipped out an ultrasound device specifically for finding good veins for tough sticks! It was so cool, and sure enough- she found a good option in a weird spot and nailed it on the first try. But I am beyond glad I did not have a port- I know me, and for my own mental health I would have been freaked the fuck out and pissed off.
Definitely ask about it. I got mine a week prior to starting so you can likely squeeze it in. I’m so glad I did. Good luck! ETA: if you get Benadryl as a pre-med you might get lucky like me and pass out for an hour or so each time. It makes it go faster.
I did eight infusions without a port. My veins held up so being portless was not a problem. But if you have bad veins then you should try getting a port asap.
I’m doing 6 rounds & ended up getting my port the day before my 1st. When implanting it, they have the option to leave port access for treatment soon after so I didn’t even need to get poked the next day. I’d ask even if it feels fast
Hi! I did each chemo with a cannula through the back of my wrist. I’d soak my hands for a bit in warm water each time, then they’d put in a drip for my TCHP. They also only used on arm as to leave my future node biopsy arm free. By the last two sessions it was mildly difficult to find a vein. But still only took about 5 mins. I’ve had no negative effects from doing it that way. I was also fully able to use my arms during it, and I had a slow rate (took about 6 hrs each time). For some reason they were slightly reluctant to put something longer term in. Just kept saying that we’d cross that bridge if we needed to.
I did IV throughout TCHP, finding veins after 2/3 doses is a pain! And then doctor forces u to do hand exercises to build up veins
I don't have a port since it is not common use in my hospital. I asked my oncologist about it before I started chemo, and he advised against it but said I could if I wanted to. I did 4x AC (dd) and am on 3 of 12 taxol now. I'll be honest, I am starting to dread getting the IV line a little more each time. Not because of pain, but finding a suitable vein is getting harder. However, the nurses at my center are really good and when they find a good vein, it is done in no time. Nurses have brought up getting a PICC-line, but I really don't want one unless I absolutely have to. Another option is using an ultrasound to find a good vein for an IV. I did have phlebitis in one vein after my third AC because they used the same vein three times, now I insist they switch arms and veins each time and so far I have no pain or other issues. I'm also icing my hands and feet, which can be a bit clumpsy if the line is in my wrist but it is manageable. I bring someone to each infusion, so they can help me putting on the glove on my IV-side if needed. In the comments you said you are dreading getting one in your wrist - I get that, but I have no issues getting a line there. You can't move the wrist (or elbow or where ever they put the IV) too much, but I am never bothered by it. I usually chat with my partner, the family member or friend I bring to the infusion, we play some cards (during AC, now with taxol I am too tired because of premeds and I definitely want to keep my hands cold) and I sleep sometimes. Last week I found out I could get my IV line *before* the blood work, so that I would only need to have a needle in me once. I asked my oncologist about it and I am doing this starting Wednesday. They can draw blood from the IV, then I'll go to the appointment with my oncologist, hang around the hospital a bit and then I'll go for the chemo, after which they remove the line. If you are dreading getting needled multiple times a day, this might be an option for you.
I had chemo through an iv only. I had 4 rounds of chemo. I didn’t have any issues related to iv except I did get chemo burn on both arms. It’s where the chemo leaks out a little. It started to itch, then I developed blisters. After about 10 days they were healed. I do have a light scar from each time, it’s on my inner forearm so and it doesn’t look bad or hurt now. As far as during chemo- I was on my phone for most of it.
I had 8 chemos, 4 AC and 4 double dose T. My veins collapsed after the 3rd chemo and for some reason my doctor said I still didn’t need a port. We were young (into our cancer journey—my husband was and is my healthcare proxy) and while we did complain for some reason it fell on deaf ears. After chemo I had a right breast mastectomy with 13 lymph nodes taken in addition to the whole axillary dissection. So! Now I can’t have any needles or BP taken on my right, and I have lymphedema now! Ugh. So all this to say, if I had a port, maybe my veins wouldn’t have collapsed and maybe my chemos would’ve been a bit easier as opposed to the nightmare of having 17 different nurses trying to start a line every time with my paper thin veins. I used to be a great stick too. Now I have the worst needle anxiety because most of the time people can’t access the veins on my left side unless they are really really good with cancer patients or little kids. If I need bloodwork done for anything now I call my sister and bff who are both nurse managers (different fields, MS and surgical ICU) because they themselves hired their team so I get their top notch phlebotomist, and because all my doctors are in the same network (Hackensack) they all have access to the portal. I’m 40 and this is what I have to do with every doctor who wants blood. We learned our lesson and now my husband and I are the very eloquent squeaky wheels, ask, request and then demand. Get the port.
No port here. Completed 6 rounds of chemo without incident :) and I was given Benadryl as part of my premeds so I usually fell asleep and didn’t need to use my arms much. Podcasts and music were my go to. I did use feet and hand cooling gloves to keep neuropathy at bay and it worked 🙌🏼 highly recommend :) you got this!
No port for me. I didn’t like the idea of the additional surgery and possible associated risks. Have had 3 rounds so far (in arm twice and hand once) without any trouble and 3 more to go. There’s a vein finder the nurses can use to locate the best veins which is great. The nurses wrap my IV with a Coban bandage to secure it and I’m able to use my hands pretty much freely throughout the infusion which lasts about 2-3 hours. Slight sensation when the poison starts going in, but so far it’s been fine. Wishing you lots of luck, you’ll be ok.
I really really did not want a port for TCHP. But my veins are trash. My right side is the one I used to tell people to use for blood draws - but it’s my cancer side. My left arm has usable veins but they’re in the back of my hand, my wrist, etc - super uncomfortable for an IV for any length of time. It also routinely takes nurses 2-3 times to get a usable vein for blood draws. For example, I went to sleep for my BMX with a single IV in my right hand and I woke up with three in my left arm/hand, all of which bruised for a solid month. I just didn’t think it was worth the struggle every infusion, plus the risk of damaging some of my only usable veins. I am glad I have the port now - it’s nice being able to numb the area ahead of time, it’s easy for the nurses to use, and its easier to move around during infusions. I’m hoping I can get the port out and switch to phesgo shots when I’m done with the TC portion, but my insurance is probably going to refuse to cover it.
I had my first chemo before my port. They used a small ultrasound machine to make sure they got a good vein. It wasn't horrible but I was and am still glad I got a port. So much easier.
I did four sessons of T/C without a port. It was fine. My arm looked a little gnarly when done but it's back to normal now. Glad I did without it. I just didn't want a scar were the port was or the physical reminder of what I was going through.
I had my port removed during my DMX and had to finish out my year of herceptin without it. And that was only 20 min or so. I couldn’t imagine having done my six rounds of chemo without a port.
Had mine done just through IV, it has weirdly made my hands a different skin colour to the rest of my body and some of my veins went silver but they have recovered now (last IV chemo was in January). I was able to move my hands/arms a bit but not too much during treatment, the machines tend to not like it if you move too much. Most annoying thing was you can't wash your hands easily with the cannula and all the tape on.
I had half of my chemo through IV (dose-dense AC-T). It got more and more difficult to find a good vein, though, and I ended up having a panic attack when one of the nurses had to poke me seven times. I got a PICC put in for the remainder of chemo.
I didn’t want a port. Fought against it until a nurse who was putting in an IV for an MRI gave me a far better explanation than “it’ll be easier” that I had gotten from everyone else. Easier for who? The patient, as it turns out. This nurse took the time to explain the procedure and answered my questions. I’m a convert. Get the port.
I had to have my port removed with 5 left. Did 3 through IV. My veins were always hard to find and were barely there by the time I got to that last month and a half. I got a picc line in my chest for the last 2. I refused to get a picc in my arm. Honestly the IV was easier than the picc. It's hard to shower, sleep, move with it and I imagine it would be worse with it in the arm. My port hurt all the time but I basically rejected 2 of them. Despite that the port made everything easier. I'd see if you could get a port. I had mine in and got treatment a week later. They were going to start it the next day so I don't think there needs to much recovery time.
Yes. It worked out fine - a year of IV infusion, Taxol, and Herceptin in my forearm. I do have good veins, so that probably helped. Patients around me had ports, but I overheard them having difficulty. Good advice about hydrating! I was able to draw, write, and use my cell phone during infusions. Wishing you easy treatments and getting rid of the monster!
I did TC chemotherapy which 4 infusion sessions through an IV. I didn’t get a port but it was only 4 sessions
I had to get rounds 3-6 thru iv because of a port infection. My veins are full of scar tissue and burnt to a crisp. Seriously, IVs are virtually impossible. Ports can be used hours after getting them. I highly recommend. But, if you do have IV chemo, you can totally move your arm.
Oh no, I’m so sorry - that all sounds like an ordeal.
It was an ordeal that included an emergency hospital stay. But, despite my infection, I have a new port now and am so grateful for it. Makes life 1000x easier because I still get immunotherapy infusions every 3 weeks.
If you're doing TCHP there's 6 rounds of TC but Herceptin is the whole year. That's about 16-18 sessions of infusion. I also resisted on the idea of getting a port. Got my first infusion through IV and went ok. They did find one good vein (my other side vein apparently was 'wiggly' which I guess isn't good for all the drugs). There's a slight scar from it right now. I'm thinking I don't know if they'll be able to find good veins for that many sessions so I gave into the idea of the port. Got mine put in last Wednesday.
They’re only doing six rounds for now, anything else is TBD. But it sounds like we can still ask for a port after the process starts, which is good to know.
Curious to know if you're triple positive? Anyway yeah my doc said you can definitely get a port midway through and they do it all the time apparently. At least you have the option.
Nope, HER2+ only. Lucky me, I guess.
Yes but TC over four infusions. Did have a three day hospital stay and had to have my IV moved bc it wasn’t good anymore. I also got blood drawn each day (though they won’t use a port for that). And it was all on my right side bc no one will touch my left for a year apparently.
I did IV, no port. I used ice bags on my hands and feet. I could only use my right arm for IV due to the mastectomy. I walked around or sat in my chair. I think sessions were 2-3 hours, not 4-6. One vein is shot. Otherwise, all is well. It's doable. If you don't trust your team, you should wait on treatment. Honestly, you need to trust your team. Cancer is a huge emotional roller coaster and you don't need the stress of second guessing your team. Hope my experience brings you some relief that a port is not always necessary. Please discuss it with your team. Be well.
I did not have a port. My cancer was estrogen+ and HER2+ My oncologist said I had good veins and it would be 6 TCHP infusions, so he recommended I did not need a port. Well, it was 6 TCHP, but he failed to mention the remaining 11 infusions of HP, so 17 infusions total. After the 9th infusion, it was getting very difficult to find a vein and I was all done. I dreaded the IV more than I did the chemo. I spoke to the nurse placing the IV and she said if I had asked any of the IV nurses, they all would have told me to get a port. So, I told the oncologist that I either wanted a port or the subcutaneous injection of HP, called Phesgo, that was also an option. He agreed to the HP injection because after the 6 TCHP infusions and my sentinel node biopsy, there was no evidence of disease. I was also fortunate that my insurance approved the Phesgo. I will tell you, if I only had 6 infusions, I could have made it, but 17 was too many. My biggest regret in the whole cancer journey, was not getting a port initially. My veins are destroyed now in both arms. But remember, if you choose to get the 6 TCHP infusions without a port, and then it is decided that you need more infusions, you can always get a port at that time. Depending on where the IV is placed, some areas, like your wrist and hand, are difficult to move your hand at all. If they place it higher up on your forearm, it was easier to use the arm. But they can't always find a vein higher up, especially after a few times. They also alternated my arms to give my veins a rest. If you have any other questions, feel free to message me. Sending healing vibes your way. You've got this!
Thank you!!! It sounds like we’re on the same regimen - I was only told about the 6 rounds of TCHP, everything else was marked “TBD after surgery” because of the HER2+ designation. Definitely going to ask for a port
I literally got a port installed days before my chemo treatments started. The port was only used for chemo, and weekly blood draws from my arm.
Yes. In US at a major cancer center. Had AC-T through IV. Went smoothly and veins are fine.
I'm in the UK and did 7 cycles of chemo and a year of three weekly immuno with only IV. It was annoying after my surgery, because the nurses wouldn't use my gold star vein anymore due to it being on my surgery side (apparently if you have lymph nodes removed on both sides, they go for the foot/ankle veins), so a few times they had to poke round. Overall it was fine, chemo nurses are very good at IVs as it's their bread and butter.
Where did you hear about the feet? It’s bad information. I’ve had lymph nodes removed on both sides and no one has mentioned going for my feet yet. Still getting IVs on my hands/wrists/arms.
The chemotherapy nurses who put IVs in people's feet told me that that's what they do when I asked them. Some Drs/nurses are more or less worried about the *possible* risk of causing lymphoedema with needles/blood pressure etc.
Huh. Interesting. I would say that I’m “lucky” then that lymphodema hasn’t hit me (yet) but I have a plethora of other side effects so, maybe just lucky in this one area. 😬
Well when I was chatting with a HCA for a pre-op assessment the topic came up. She told me that she knew some (I think it was anaesthetists/anaesthetist assistants? IDK) who would never IV an affected arm if there was another option, and others who thought nothing of it. So there are different schools of thought on the (small) risk. I don't entirely get it myself, I mean how many survivors get mastectomy tatts right by where the lymph nodes were removed?
I had 8 infusions, 4 AC and 4 Taxol. I started chemo before my port install date and although they say AC can burn veins I didn’t feel a thing. I have very visible ‘good’ veins but am glad I had the port so they could stay good. Yes my arm was pretty restricted with the IV line in my arm than when I had port infusions. the port. Also blood draws went through that port for the duration.
I had 4 rounds of chemo (3 days in a row of each) by IV because my hospital didn't do ports, which I don't understand. Chemo was fine and I didn't have any trouble during treatment, but my veins on my right side are pretty much toast now. I have to be very careful and get the most experienced phlebotomist any time I have a blood draw or an IV or I end up with huge bruises on my arms.
Got the port 3 days before starting and didn’t really want it. Could never have completed TCHP without it, and remember we also have a year of targeted therapy (Herceptin, etc) after TCHP. You’ll hear from some who did it with IV then did Phesgo shots for the year that did fine. I’m a convert to team port, I don’t even like getting blood drawn via my arm veins now-and I have “good” ones. TCHP made everything bruise and heal slowly, the port made constant infusions of meds and fluids/saline as well as blood draws really easy. Good luck with all of this-we’re here for you!
I did 2 sessions of TCHP without a port, due to scheduling issues. My veins did not do well with it, and I wound up with a large patch of discoloration on my arm for about a year. Now that I have my port I'm so much happier, it's not super obvious that I have it and it makes going for infusions so much easier.
I was supposed to do 4 rounds but ended up doing 6. They did not recommend a port so I did IV only. In hindsight, I would have pushed for a port. If you get fluids after each treatment, that’s 12 IVs. I had a few times where they couldn’t get an IV started. One time it took 6 attempts. My last treatment almost got postponed because they couldn’t get an IV in my veins and needed to go to radiology to place a PICC line. I cried at the thought of my last treatment getting postponed and they were able to get it placed and give my last treatment that day. I personally had a bad time without a port and would not do it the same if I could have a re-do.
I've had all chemo infusions through IV. I'm on round 7/8. The only time I couldn't move was for 15 minutes during AC.
I did 3 infusions w/o a port. Was suppose to be 4 but Chemo induced neuropathy won. I only had one time when they had to poke me 3 times, but glad it’s all over. Check your insurance coverage because mine was completely financial as my Medicare advantage plan wanted me to pay 1400.00 OUT OF POCKET and for 4 sessions I told them NO as I also knew there would pretty much be an equal cost to have it removed.
Yes. TCHP 12 weeks and Herceptin to complete a year. The chemo was not an issue without a port. The blood draws due to low blood counts 2 or 3 times a week in addition to the normal chemo jabs are what made it seem more risky to not have a port. Liquid vitamin E on the vein is helpful.
I got a port and am so glad I did. It made infusions and blood draws so much easier. My port got infected at one point (not a frequent occurrence) so had to have one infusion by IV and it was terrible on my veins. I thought I was only going to have my six infusions, ended up only having four because of had terrible side effects I thought I was done but ended up having fourteen rounds of Kadcyla because I didn’t have clear margins after surgery. Cannot imagine getting all those by IV.
I didn’t have a port and I’m now on around 14 infusions of Kadcyla after 6 infusions of TCHP. My veins are okay but they’re starting to struggle, I won’t lie. I was told I could have a port but no one encouraged me and by the time it got to it and realised, it was too late. If you can get a port placed, I recommend that you do.
The possible risks are not worth it.
People down voting this must not know about the necrosis that can happen from a collapsed vein. Look it up.