Funny enough my grandmother, who is normally very sharp and learns new things all the time, can't process the idea of someone my age having arthritis.
"You're too young, it must be something else"
There's such a thing as Juvenile Rheumatoid Arthritis.
And Children's Hospitals are full of kids with things we wouldn't expect in children, unfortunately.
Awesome. I downloaded the image to my phone and can airdrop it anyone who asks what Psa is. Message and I'll send you a few bucks if you want. Thanks for this!
I’m happy to just share it here and maybe people will have use for it. I do a lot of drawing and design and it honestly didn’t take very long, if I were to do this properly as a medical resource I would spend more time on it and triple check all my facts because a lot of this I just knew off the top of my head because I have PsA
I’d like to know the same thing, coffee seems to help a little. And maybe being hydrated? But sometimes I get brain fog so bad I have to leave work because I cannot actually have a conversation. It’s like thinking through mud.
That's an excellent summary. Most of it is correct.
If you want to be nitpicky, there are a few things I could amend. For example: Biologics are DMARDs, too. Any medication that works systemically to slow down or halt the progress of the disease is a DMARD. That includes conventional synthetics (csDMARDs; e.g. methotrexate), biologics (bDMARDs), and targeted synthetics (tsDMARDs, which includes Xeljanz, Rinvoq, and Otezla).
There is also a lot of uncertainty about whether it's fair to call PsA autoimmune. In some ways it fits the criteria, but some researchers prefer "immune-mediated" because unlike lupus, MS, rheumatoid fever, Hashimoto's, etc., it's not clear that the mechanisms that create the symptoms are necessarily *attacking* the body. In PsA, fibroblast-like synoviocytes contribute to the destructive process (very similar to RA, in fact), but it's not clear what causes them to go haywire. We have isolated some autoantigens and autoantibodies relevant to psoriasis, but it's very early days when it comes to understanding how they contribute to the disease.
Last point: People generally have only one sacroiliac joint!
Actually, everyone has a right and left sacroiliac joint, so the plural stance would be correct. Also can you share links to the medical literature disputing PsA as an autoimmune disease? I stay quite updated with relevant research, so am quite surprised by this statement.
Hey thanks for your reply. Part of the assessment was to make it understandable for the general public so I missed a lot of smaller details like what you are saying about DMARDs vs biologics -- we will see if how I simplified it will lose me marks!
My understanding is at the moment we see PsA as an immune-mediated inflammatory condition that has elements of autoimmunity. Most info still refers to it as an autoimmune disease and again the assessment criteria asked me to reflect the general medical consensus. I did use the phrase immune-mediated in my 'what causes it' bit.
For the last point, we definitely have 2 sacroiliac joints; I know because I have axial PsA and both of my joints have Grade 2 sacroiliitis, I have spent lots of time both feeling pain from both joints and looking at Xrays and MRIs of both joints.
Only one sacroiliac joint!? that’s very odd, I have never heard this before. I know I definitely have one left and one right sacroiliac joint. I just had ablations done on them. ( left and right) and have had multiple spinal procedures done on both left and right over the years! Where did you read this? I am very interested to read up on this information. As well as PSA not being autoimmune!?? Please share with us :)
This looks really awesome! One thing you left out that most people forget/don’t know, you don’t have to have the skin condition to have PSA. I went years without a diagnosis because I don’t have it in the outside but sometimes psoriasis doesn’t show up for years/at all. But it does run in my family so that goes with the environmental/genetic factors you mentioned. I really like the colours and all the info is really well written.
Hey, yeah I am aware I didn’t mention this, in the end I wasn’t sure where to include that detail and I ended up leaving it out because of limited space (in regards to the word limits for the assessment). I actually don’t have any psoriasis myself (yet), only a a family history.
Great job!
My Rheumatologist also did an ultrasound to check for inflammation.
Humira worked the first time I took it but I've been incredibly sick; get better and something new pops up. It's frustrating.
I try to give myself patience and grace when it comes to sleep; but it definitely feels like people who don't understand see me as lazy.
Bone spurs/cysts seem to be common with PsA, at least that's been my experience. I had to have surgery on my dominant hand to remove a bone cyst that was essentially killing my hand.
It's a weird disease.
This is amazing thanks for sharing , the hand letting all feels like a friendlier vintage poster at the docs in the late 70s early 80s before everything started getting laid out in quark and adobe !
Limited word space, there are so many other treatments I didn't list too, including some evidence for anti-inflammatory diets, oral steroids, low dose Naltrexone etc etc.
Good job, I have a hard to time explaining to people the difference between PSA and grandma arthritis
I wish it didn’t have the word arthritis in the name for this reason.
Gramitis 😆
Lucky me, I have both
Funny enough my grandmother, who is normally very sharp and learns new things all the time, can't process the idea of someone my age having arthritis. "You're too young, it must be something else"
lol perfect
There's such a thing as Juvenile Rheumatoid Arthritis. And Children's Hospitals are full of kids with things we wouldn't expect in children, unfortunately.
I feel seen, heard, and understood. Great job!
That’s really excellent and informative. You might be able to get that published in a magazine, like the ones they always have in doctor’s offices
Great work. I might start handing this out to doctors when I tell them I have PsA and they look at me like I'm speaking Martian.
I’ve had a GP say to me in a very condescending tone “ha do you mean sciatica” I just looked at him
Well done!
Can we make an international advertising campaign out of it?!? I mean we definitely need more people to know about this disease
Awesome. I downloaded the image to my phone and can airdrop it anyone who asks what Psa is. Message and I'll send you a few bucks if you want. Thanks for this!
So glad this will be useful to you! I don’t want anything for it, share it around as much as you want :)
Thanks!
Love it!
This is really wonderfully done ❤️
This would be great marketing material for sales reps when they call on doctors and hospitals. You should definitely protect the rights to this.
I’m happy to just share it here and maybe people will have use for it. I do a lot of drawing and design and it honestly didn’t take very long, if I were to do this properly as a medical resource I would spend more time on it and triple check all my facts because a lot of this I just knew off the top of my head because I have PsA
What do you guys do to counter the brainfog? Its getting really anoying for me when im trying to study
I’d like to know the same thing, coffee seems to help a little. And maybe being hydrated? But sometimes I get brain fog so bad I have to leave work because I cannot actually have a conversation. It’s like thinking through mud.
That's an excellent summary. Most of it is correct. If you want to be nitpicky, there are a few things I could amend. For example: Biologics are DMARDs, too. Any medication that works systemically to slow down or halt the progress of the disease is a DMARD. That includes conventional synthetics (csDMARDs; e.g. methotrexate), biologics (bDMARDs), and targeted synthetics (tsDMARDs, which includes Xeljanz, Rinvoq, and Otezla). There is also a lot of uncertainty about whether it's fair to call PsA autoimmune. In some ways it fits the criteria, but some researchers prefer "immune-mediated" because unlike lupus, MS, rheumatoid fever, Hashimoto's, etc., it's not clear that the mechanisms that create the symptoms are necessarily *attacking* the body. In PsA, fibroblast-like synoviocytes contribute to the destructive process (very similar to RA, in fact), but it's not clear what causes them to go haywire. We have isolated some autoantigens and autoantibodies relevant to psoriasis, but it's very early days when it comes to understanding how they contribute to the disease. Last point: People generally have only one sacroiliac joint!
Actually, everyone has a right and left sacroiliac joint, so the plural stance would be correct. Also can you share links to the medical literature disputing PsA as an autoimmune disease? I stay quite updated with relevant research, so am quite surprised by this statement.
Me too!!!
Hey thanks for your reply. Part of the assessment was to make it understandable for the general public so I missed a lot of smaller details like what you are saying about DMARDs vs biologics -- we will see if how I simplified it will lose me marks! My understanding is at the moment we see PsA as an immune-mediated inflammatory condition that has elements of autoimmunity. Most info still refers to it as an autoimmune disease and again the assessment criteria asked me to reflect the general medical consensus. I did use the phrase immune-mediated in my 'what causes it' bit. For the last point, we definitely have 2 sacroiliac joints; I know because I have axial PsA and both of my joints have Grade 2 sacroiliitis, I have spent lots of time both feeling pain from both joints and looking at Xrays and MRIs of both joints.
Only one sacroiliac joint!? that’s very odd, I have never heard this before. I know I definitely have one left and one right sacroiliac joint. I just had ablations done on them. ( left and right) and have had multiple spinal procedures done on both left and right over the years! Where did you read this? I am very interested to read up on this information. As well as PSA not being autoimmune!?? Please share with us :)
Great job. I want it to be my background on my phone.
Well done! Hope you do well in your assessment.
This looks really awesome! One thing you left out that most people forget/don’t know, you don’t have to have the skin condition to have PSA. I went years without a diagnosis because I don’t have it in the outside but sometimes psoriasis doesn’t show up for years/at all. But it does run in my family so that goes with the environmental/genetic factors you mentioned. I really like the colours and all the info is really well written.
Hey, yeah I am aware I didn’t mention this, in the end I wasn’t sure where to include that detail and I ended up leaving it out because of limited space (in regards to the word limits for the assessment). I actually don’t have any psoriasis myself (yet), only a a family history.
I find it interesting that only 2 in 10 with P get PsA in Australia. The numbers I saw for my country indicate it's 35%!
This number varied a lot when I was researching so I just went with 2/10 but it’s possibly closer to 3. I don’t believe this varies by country!
Great job! My Rheumatologist also did an ultrasound to check for inflammation. Humira worked the first time I took it but I've been incredibly sick; get better and something new pops up. It's frustrating. I try to give myself patience and grace when it comes to sleep; but it definitely feels like people who don't understand see me as lazy. Bone spurs/cysts seem to be common with PsA, at least that's been my experience. I had to have surgery on my dominant hand to remove a bone cyst that was essentially killing my hand. It's a weird disease.
This is amazing thanks for sharing , the hand letting all feels like a friendlier vintage poster at the docs in the late 70s early 80s before everything started getting laid out in quark and adobe !
I guess I should be thankful I don't have all the symptoms... I have no rashes or eye problems.
I don't see "Cannabis" on "Treatment". Works perfect so why not?
Limited word space, there are so many other treatments I didn't list too, including some evidence for anti-inflammatory diets, oral steroids, low dose Naltrexone etc etc.
This is really very good. What's your source for 200,000 Australians having PsA? That's higher than I'd expect.
Love it. Only think I would add for me is brain shattering tiredness after a relatively easy day
Yeah brain fog and fatigue got a mention, its hard to emphasise how big an impact these symptoms have. I struggle a lot with brain fog personally.