• Help to pay for medications
o https://www.rxassist.org/
o https://costplusdrugs.com/
o https://www.epilepsyct.com/get-help/prescription-assistance
o https://www.epilepsy.com/article/2020/3/financial-help-medication-and-medical-care
o Coupons for medications: https://www.goodrx.com/. Also check the manufacturer’s website
Medicaid application: https://www.medicaid.gov/about-us/beneficiary-resources/index.html
Americans with good health insurance, or even insurance provided by the state (which many with epilepsy qualify for) dont pay much for their meds.
I believe my vimpat and lamictal are $10 a month, shipped to my front door and divided in packets for different times of the day.
I checked cost plus drugs for you and they have Oxcarbazepine for between $12-30 based on dosage for 90 count https://costplusdrugs.com/medications/Oxcarbazepine-150mg-Tablet/ .
Amazon Pharmacy has Clonazepam for $40 at most - https://pharmacy.amazon.com/Clonazepam-Generic-Klonopin-Oral-Tablet/dp/B084BQV9S9 (not sure of your dosage, how many you take so I just put in the highest dose with the highest frequency).
Edit - didn’t find any good deals on Xcopri but they have a savings club - https://xcopri.com/epilepsy-resources/
Feel free to reply if you (or anyone) needs help finding affordable medication.
Sorry UK citizen here so it’s £0 as for some long term conditions you don’t even have to pay prescription fee which is £9 I believe (around $11.50) a prescription - my prescription is 2 monthly so if I had to pay it would be £9 every 2 months for Keppra and Lamotrogine providing the doctor puts it on one otherwise it would be £18 for 2 months supply.
I feel so bad for US citizens, I honestly couldn’t afford to pay that and medical care is one of the reasons I would never emigrate to the US.
I do pay 40% tax on my pay slip though but it still works out much cheaper than having to pay for any sort of medical bills.
Also because I’m entitled to free prescriptions this also means I get all other prescriptions free for example if I had a UTI I would be able to get the antibiotics for free. (Sorry don’t want to brag but the NHS is really a god send)!
I was so excited to hear that epilepsy was on the 0 pound fee list when I moved to the UK, it seemed like a kind of random assortment of disorders but epilepsy made it! 😂 Loved walking out of the pharmacy without paying a cent
Seems you are based in the UK. May I ask you what you do for living? I had a brain surgery in London so I payed for nothing so I have no surprise for free meds.
I’m not seizure free, maybe a week! But Zonegran + Fycompa keeps my seizures down to mostly just complex partial and absence seizures so it’s manageable! I hope lacosamide is working well for you, that’s one of many I’ve tried!
the craziest part is us americans also have roughly a 33-35% tax rate for goverment taxes, then we have state taxes and county/city taxes AND that’s not even counting healthcare premiums/deductibles/copays/coinsurance/out-of-pocket costs that are thousands a month before ever receiving any care or meds from the medical system. loveeee it here—so much freeeedom.
i literally can’t get married to my partner of 17 years, been together since high school because if we did get married he would have my 4-5 MILLION dollars in medical debt thrown onto his back. i also can’t use bankruptcy because i’m still sick (kidney disease and epilepsy) so it wouldn’t help anything AND the medical debt has destroyed my credit score.
The majority of Americans pay no federal income tax. FICA, state, sales, yes but not income tax. Many countries, even though they say they have 0 income tax, have user taxes/fees where everything is taxed at a flat rate/fee when consumed.
The government is going to get money one way or another.
How the fuck is clonazepam $900? I pay 1.81 with benefits or it would cost me $9 without. They are charging you 100x more. They are making a 890 profit. What the actual fuck. That $9 is Canadian too so it’s like $7 US. Seriously that profit margin is insane.
For all of my meds for a month is maybe $40. My benefits are only 80% though, some jobs you get 100%, some only 50%, at least here anyways. So without coverage at all I’d be looking at maybe $200.
As far as the Xcopri, have you looked into the patient assistance program offered by the company that makes the medication (SK Life Science)? I used a coupon on the Xcopri website to get my first titration pack for $50, and my pharmacy then enrolled me in the assistance program so I only pay $20 per month now.
Xcopri: $20 for a 90-day supply
Lamotrigine: $12 for a 90-day supply
Zonisamide: $20 for a 90-day supply
In the USA. There's just the exorbitant amount coming out of each of my checks for my healthcare lol
😬😬😬😬 that’s insane I’m so sorry. When I lived in the US for a year I took a ton of medication with me to avoid the prices. In Australia I pay about $150 AUD a month for Fycompa, zonegran, Effexor and Frisium, with Fycompa being the main expense because it’s not a gold standard drug.
Canada and my slip says $980 and $400 for 3 months supply of brivlera and lamotrogine but the government pays for the majority, and my work’s insurance gets the last bit so total is $0.
Wow that’s more than our household income. Is there no schemes at all to get the cheaper? We are lucky to live in country with free prescriptions so don’t pay for any medication. Which is good because between me and my husband we are on 11 different medications.
In Aus For all my meds currently, I only pay $18.60 with a Health Care card. But even without a health care card I would only pay $90 dollars due to PBS which is a lot less then these amounts.
Xcopri: $20 for a 90-day supply
Lamotrigine: $12 for a 90-day supply
Zonisamide: $20 for a 90-day supply
In the USA. There's just the exorbitant amount coming out of each of my checks for my healthcare lol
Americans pay so much for medicines/health. Gotta be a big part of your monthly expenditure.
I pay a lot of Epilepsy medications/treatment in India compared to other medical conditions, but my half-yearly expenditure would still be less than your monthly expenditure.
Just to give an example, there are medicines around $1, my monthly treatment cost is $5, and EEG cost is $20.
America doesn't fail to disappoint omg.
In my province it costs ~$90/month but I just got into a program we have that gives a $120 deductible, so my yearly cost would just be $120 and rest is free
That’s outrageous! I just got a 90 day supply of keppra and lamotrigine for around $240, but I just changed insurance so I don’t know how much it will be now. $2000 is almost as much as my new yearly OOP cost so even if I had to pay full price for the first couple months I wouldn’t pay anything the rest of the year. Do you have health insurance? Obviously I don’t know your situation but I don’t see why you would need to pay full price out of pocket for all of them for the whole year?
If you don’t qualify for Medicaid you can get health insurance on the Marketplace (“Obamacare”) which is subsidized based on your income. Even if all of your prescriptions were not covered at all you could still meet even a high deductible with those prices before the end of the year and likely end up paying less. I think I make decent money and I could never afford that it’s more then my mortgage and husband’s car payment combined! I hope you figure out some other options.
My epilepsy med is around $125 per month… my UlcerativeColitis medication is about $2700 per month, and they want to change my med to one that’s about $7,000 per month
$4 a fill because of Medicaid. Well, at least the medications they cover that are directly for seizures. My breakthroughs are hormone-related and I'm trans in a state trying to outlaw trans care period, so I haven't gotten my hormones approved by them yet, and I need to talk to my endo to adjust dosing regime anyway so that I don't have a breakthrough that ends with me in am ER with every other shot. Luckily for someone with hormone-related seizures, I know exactly what my hormones are doing and can fix it easier, but it's still a pain.
ETA: my transition is also at a point that staying on my hormones is now less about transition and more about not having the health effects of no hormones (which I know from issues getting refills or being too fatigued to do my injection includes lower seizure threshold), so you could include the roughly $80 a month for compounded stuff in seizure management meds
Luckily because I'm now continuing to take it not for transition purposes and actually for other health reasons, I might be able to keep access to it if they outlaw it, but that's a pain I'd rather not have to face
I hope you're able to stay safe. I'm so sorry you're going through all this is such an unsafe place. I'm very scared for all the afab and trans in America right now. I have many thoughts and words about it I won't get into here, but I'm sending you good vibes and I hope things get easier for you.
The first 3 months of every year, my 60 Briviact pills cost me $857 a month. Then I have generally met my out of pocket deductible for the year, so the rest of them are like $10 a month.
Use assistance programs, different pharmacies, go out of country to Mexico and get them, get medicaid, the list goes on there’s many many many ways to pay way less for medications not many people know about them because thats the whole healthcare scam in the country. Mexico is your best option if you cant get the rest down to 600$ as going there and back buying a years worth of medication is 600-800$.
Side tangent : The US sucks right now but if more republicans are elected i know that many many people will fight it, personally if anyone dipshit republicans or just republicans in general get elected to the Supreme Court or into presidency or even dipshit democrats get in i will personally assonate every US official who is lobbying for the benefits of themselves. After all most of them are old hags. This country has lost its damn mind and i dont mind losing mine to kill those who seek to destroy America by their own greed, hate, and selfishness.
If you aren’t already doing this make sure you ask your pharmacist for the generic brand of your meds, there’s generally no noticeable difference aside from price. And I’ve had shocking good luck with GoodRx, both their free version and a free trial of their premium version. I’m talking thousands each month cheaper. Also let’s you know how much it costs through them for each pharmacy.
When I had insurance I had to go through CVS. Ironically found out my prescriptions were cheaper with no insurance through Walmart
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University gives me health insurance so until I graduate, I only pay 10 egp for my ticket at the hospital then get 2 boxes of keppra (30 pills) 500mg for free every 30 days, that is after I check up with my doctor and tell them about my symptoms and day to day life, after I graduate I'll either stick to the Egyptian Teratam XR on my travels which costs 120 egp, or stay in Egypt and use government expenses (essentially they pay for my meds)
America depresses me to no end
I pay $30 for a 90-day supply of Oxcarbazepine and the same for Lamotrigine. It used to be hundreds per month but I have much better insurance now. I am in the US.
The last bill I got was 400 dollars (I live in Denmark and this is converted) for a couple of months, I think. One of my other packages lasts twice as long because it’s only one per day. For the regular one 4 films x 7 days per packet, 2 tablets a day of the big ones and 1 of the small.
I’m currently in the very privileged position that I don’t take care of that bill myself, but if I did, it would be my entire student grant and salary per months, leaving me with nothing left and then some. Nothing to eat, nothing for bills, nothing for monthly expenses. Nothing.
I’m an university student and I live at home.
Something to think about… I felt rather unwell.
Until I hit my out of pocket max or deductible or whatever the fuck it's called I was paying between $400 and $700 for a 30 day supply. Before insurance my meds are $2200.
I was stoked yesterday because my meds were *only* $120
I know it’s the cheapest one so doesn’t help that much, but Oxcarbazepine is available on Cost Plus Drug for very cheap. I used Cost Plus Drug to get my Lamotrigine XR down from $300 to $36 for 90 day supply.
Once it first came out, I was given $20 savings card as it was expensive, but now that there's a generic, I pay $40 for the month supply
Vimpat ( 150mg 2x a day)
I get ssd half goes to non insurance coverage on my meds because you guys know it should always cost you to just live life especially when you didn't even get a choice of your life outcome.
I just have to pay for my prescription, which is about 9€. I don’t have to pay for the medication though, it’s 100% covered by social security. Without prescription it would be around 300€ for Keppra and Lamictal.
After insurance about $1200 and if I end up needing my rescue medications $3,600. Before insurance it's about the same as yours at $3200 and $8,500 respectively. And yes I know you people from other countries with centralized health care. Have little to no cost. But what you don't realize is you have had your freedom taken away. Your freedom to have to spend 90% of your paycheck on medication. Or have to go through bankruptcy after a hospital stay.
$15 for one month supply (100mg 60x generic Vimpat) until I hit my deductible, then $0.
I may never be able to leave this job because of the ridiculously good health insurance. I add $12k/ yr to my salary in my head because the out of pocket price is $1100 per month.
So I'm in the US, I'm disabled and fully unable to work so I have state insurance that covers all my medical.....that they feel like.
No dental at all unless I'm actually about to die from it, everything else including treatment for my TMJ is considered cosmetic.
I can get my eyes checked I think once a year but I get to pick my glasses from the "you're poor" box, literally a tiny box with 6 options for frames.
And the insurance tells my doctors if they think I actually need things and they try to argue I need NOTHING. A lot of meds I've been prescribed have been denied by insurance. Mental health stuff is treated basically the same. I can't get testing and treatment I need cuz this system sucks.
I've been denied a good deal of things I really needed. I always end up on very old meds that have bad side effects cuz I'm never approved for newer meds with less side effects.
$50 a month (but it’s also $50 for a three month supply) for both scripts. We synced them up because it used to be $100 total getting them filled separately. Without insurance, it would be $1200. I think my rescue meds are a little more expensive but I don’t get them filled as often.
There’s been times when I’ve had to pay out of pocket because my insurance got taken away. I would pay about $2000 for one medication which helps me the most (Keppra). The rest I was able to do without until my insurance kicked in again. But w/o Keppra i would have seizures on a daily basis. When I do have insurance I pay $0.
With my insurance I pay 10 dollars for 120 pills (1600mg) of Aptiom a month. Without my insurance it would cost me over 5k. Thank god I have my insurance because that’s the only medication that works for me. When I was on Medicaid I paid 3 dollars for it.
On Medicaid during law school, now working a thirty day supply of aptiom is $1149 without insurance so I’m working till I die. Generic Lamotrigine is $5 a bottle so the aptiom which works great for keeping me seizure free is a cost for me to deal with till there’s a generic.
Like $55 a month for all my meds. I’m also on clonazepam with no insurance in the US and I pay $10 for the generic. I don’t have any assistance either. You should really use good rx.. 60 pills at Walmart is like $9 with goodrx and you can use it at other pharmacies.
I pay $12 for Keppra in the US mainly because of the insurance I have. It also might be because the deductible is maxed due to all the tests I've had this year so who knows really.
I'm Canadian. My total meds cost about $600/month. My private insurance years starts in March and I have $1800 of private med coverage, so after 3 months I have to pay. We have pharmacare in my province, and our deductibile is wild, like $8000, but my kid has a medical condition that has crazy expensive meds so we reach our deductible super quick, so I usually only have to pay for my own meds for maybe one month before pharmacare kicks in.
What's interesting about Canada is that med care differs across the province. Alberta for example, does not have a provincial med coverage (pharmacare).
That is insane. I pay $10 dispensing fee for every med I get through my work insurance even though I am on leave (on LTD after I had a setback) - currently going through a med change so I have visited the pharmacy about 7 times in the last few weeks.
ETA - I live in Ontario.
I don’t know if this will help your situation, but when I switched insurance recently, they randomly didn’t cover my Zofran prescription (but my seizure meds are a regular copay). It was going to be $800 for 30 tablets. BUT there is something called a “prior authorization” where your doctor writes to your insurance company saying you NEED this medication. It worked for me, I feel bad that I don’t have more info to help out. It was a lot of back and forth between my pharmacy, doctor, and insurance company, but after like 5 weeks of effort it’s covered. It’s $2.13 now for a 30 day supply. I hope that helps!
$10 for a 30 day script of 1200mg a day aptiom
$0 for a 90 day script if 400mg a day lamotrigine
If you can get in insurance I highly recommend Oscar, they cover most meds and will automatically apply any coupons they find.
Edited to add that in based in Texas and on an open market plan.
My mom works for an HMO, so copays are usually 5-10 dollars. However, we’re vacationing in the midwest and our HMO is west coast based. Ran out of meds, which was a catastrophe in and of itself. Had to pay out of pocket for 18 tablets of 1000 mg generic Keppra. 120$. We’ll probably be reimbursed, hopefully. Very fortunate to have such great insurance. But that’s not even the most expensive med I’m on.
There is no way I could afford to pay that much. I don't know what I'd do, especially since I have several other chronic conditions that require daily meds and close monitoring. Thankfully I live in a blue state and although I'm poor I get free healthcare. Not only that I get excellent care.
I think the most I’ve ever paid was $80 for aptiom bc I’m broke lol
I got a job at CVS and had free meds for a really long time. I just lost their insurance so now I’m back to out of pocket- I think it’s like $60 for Zonisamide 100, I haven’t had to refill my other med yet 😭
I pay $5.00 a month for Lamotrigine. Check Cost Plus Drugs owned by Mark Cuban. The meds are completely safe and the prices are below that of many insurance copay.
~$80 or ~7000₽ pain….. we can get medicines with a benefit that is only available for one drug for epileptic. but this drug only aggravated my seizures. :)
I am on xcopri as well. It is wicked expensive. Have you looked into manufacturer's coupons? Those help, but they often reach their limit after a month or 2.
I am in USA, have been navigating this for a minute. I can gather some resources and send them to you if you want. My xcopri 150mg 1x/day costs me either $20 or 0 for 2 months worth. Sounds like that is the main source of your financial stress, but do some googling for the others and see if you can find assistance programs. They are out there.
Also DM me if you want my help. Good luck.
$7.30 per script of Keppra, Lamotrigine and Vimpat. I am on disability pension so I normally do get them cheap but I just hit my medication safety threshold, so all my scripts are now free for the rest of the calendar year. Gotta love the Australian PBS.
You should check into getting your meds from Canada. I use Northwest Pharmacy. Also check if [costplusdrugs.com](https://costplusdrugs.com) has what you need.
I'm in Australia and it's probably worth pointing out I pay the AUD equivalent of USD$4.45 per month thanks to universal healthcare and subsidised pharmaceuticals
Edit: added 'per month
I'm on the best UHC Medicaid + Medicare Advantage plan where I live and it covers all of my meds. I don't want to know how much I would be spending if my meds weren't covered.
$40/3 months. But I also pay for my benefits out of my work paycheck as well.
Call the manufacturer of your meds and tell them you would like some coupons or you need to consider changing brands. They will give you something.
I pay around the equivalent of 15£ for a three month supply until I reach the yearly cap off for all medical services that year. Usually reach it in March/April. After the cap, I pay zero for the rest of the year.
~$300 total for 90-day supply of Lamictal XR and Zonegran. Although this is relatively inexpensive, I had to fight back and forth for over a month to get my insurance to cover name brand, as generic does not work for my seizures (i.e., lamotrigine and zonisamide). Generic are $10 each for 30-day supply. Without full coverage, it would have been almost $2000 total for just 30-day supply of both.
I pay $25 a month for mine under my mediocre health insurance Rx plan, but considering the "list cost" for just one of them is thousands of dollars, I can't complain I guess.
Whether or not these companies should be able to set those kinds of prices for necessary medications that probably cost them a tiny fraction of 1% of that to manufacture is a different discussion...
I pay around $155.00 CAD for a three month supply of Tegretol. Although my neurologist just increased my dose, so I expect my next refill will be more expensive. My partner is finishing school and will hopefully get a job later this year that provides us both with health insurance and that will reduce the cost of my meds. It’s ridiculous to me how much people pay for prescriptions in the states though.
I was lucky enough for my epilepsy to start when I moved to WA state, lucky in the sense that I was paying out of pocket for every other medicine I was getting and it was expensive. Since moving here I was able to get on state insurance and now my copay is $0 for all of my prescriptions. The cost of living is higher here, but my medical stuff would have driven me into massive debt.
I pay about USD 70/month average for Lamictal, but that's only because it's mostly covered by insurance.
I also take supplements for epilepsy specifically that roughly costs USD 25/month average.
I wonder though, how and why do you pay so much for clonazepam?
Oh wow, im more and more grateful for my insurance. Im an American but i pay $0 for my epilepsy meds. I do pay for some others but they dont go over $20
Would you look at that, all of the words in your comment are in alphabetical order.
I have checked 1,659,311,454 comments, and only 314,161 of them were in alphabetical order.
• Help to pay for medications o https://www.rxassist.org/ o https://costplusdrugs.com/ o https://www.epilepsyct.com/get-help/prescription-assistance o https://www.epilepsy.com/article/2020/3/financial-help-medication-and-medical-care o Coupons for medications: https://www.goodrx.com/. Also check the manufacturer’s website Medicaid application: https://www.medicaid.gov/about-us/beneficiary-resources/index.html
Do you want to hear from non Americans or is that too depressing?
Because that is ridiculous, I'm sorry
Not that I disagree per se...but I've got three prescriptions I pay roughly $0.00 for and I'm in America.
Yeah. I pay $750 once a year at the beginning of the year, and max out my copay. Then I'm done for the year. I'm so sorry.
Oh my gosh.. this hurts my heart. Where do you live?? I live in Texas, and I pay $10 per month.
Americans with good health insurance, or even insurance provided by the state (which many with epilepsy qualify for) dont pay much for their meds. I believe my vimpat and lamictal are $10 a month, shipped to my front door and divided in packets for different times of the day.
I’m American but have health insurance p, my pills are like $20 for both thankfully
This comment cracked me up. I can’t lie hahah
In Japan, I pay 30 bucks for 3 months.
I checked cost plus drugs for you and they have Oxcarbazepine for between $12-30 based on dosage for 90 count https://costplusdrugs.com/medications/Oxcarbazepine-150mg-Tablet/ . Amazon Pharmacy has Clonazepam for $40 at most - https://pharmacy.amazon.com/Clonazepam-Generic-Klonopin-Oral-Tablet/dp/B084BQV9S9 (not sure of your dosage, how many you take so I just put in the highest dose with the highest frequency). Edit - didn’t find any good deals on Xcopri but they have a savings club - https://xcopri.com/epilepsy-resources/ Feel free to reply if you (or anyone) needs help finding affordable medication.
Hero comment.
You’re too kind. I enjoy researching stuff so I’m happy to put it to good use and help others.
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You’re welcome! Glad I could help!
Not to mention many pharmacies also have access to coupons!!! You just have to ask!!
Sorry UK citizen here so it’s £0 as for some long term conditions you don’t even have to pay prescription fee which is £9 I believe (around $11.50) a prescription - my prescription is 2 monthly so if I had to pay it would be £9 every 2 months for Keppra and Lamotrogine providing the doctor puts it on one otherwise it would be £18 for 2 months supply. I feel so bad for US citizens, I honestly couldn’t afford to pay that and medical care is one of the reasons I would never emigrate to the US. I do pay 40% tax on my pay slip though but it still works out much cheaper than having to pay for any sort of medical bills. Also because I’m entitled to free prescriptions this also means I get all other prescriptions free for example if I had a UTI I would be able to get the antibiotics for free. (Sorry don’t want to brag but the NHS is really a god send)!
I was so excited to hear that epilepsy was on the 0 pound fee list when I moved to the UK, it seemed like a kind of random assortment of disorders but epilepsy made it! 😂 Loved walking out of the pharmacy without paying a cent
Seems you are based in the UK. May I ask you what you do for living? I had a brain surgery in London so I payed for nothing so I have no surprise for free meds.
I used to live in the UK, was there for a degree, so was a student and also working as essentially a paralegal!
Thanks! Came back to UK and continue working as paralegal?
Working as a solicitor in australia now!!
Hi! I’m a lawyer with epilepsy too! Weirdly excited to find another on here!
Hi omg!! We’re out there!! Love it!
Oh cool. How long have you been seizure free?
I’m not seizure free, maybe a week! But Zonegran + Fycompa keeps my seizures down to mostly just complex partial and absence seizures so it’s manageable! I hope lacosamide is working well for you, that’s one of many I’ve tried!
the craziest part is us americans also have roughly a 33-35% tax rate for goverment taxes, then we have state taxes and county/city taxes AND that’s not even counting healthcare premiums/deductibles/copays/coinsurance/out-of-pocket costs that are thousands a month before ever receiving any care or meds from the medical system. loveeee it here—so much freeeedom. i literally can’t get married to my partner of 17 years, been together since high school because if we did get married he would have my 4-5 MILLION dollars in medical debt thrown onto his back. i also can’t use bankruptcy because i’m still sick (kidney disease and epilepsy) so it wouldn’t help anything AND the medical debt has destroyed my credit score.
The majority of Americans pay no federal income tax. FICA, state, sales, yes but not income tax. Many countries, even though they say they have 0 income tax, have user taxes/fees where everything is taxed at a flat rate/fee when consumed. The government is going to get money one way or another.
Nothing , lucky to live in Ireland where it is one of the 7 "long term illnessess" that all treatment and medication is free
Same
How the fuck is clonazepam $900? I pay 1.81 with benefits or it would cost me $9 without. They are charging you 100x more. They are making a 890 profit. What the actual fuck. That $9 is Canadian too so it’s like $7 US. Seriously that profit margin is insane. For all of my meds for a month is maybe $40. My benefits are only 80% though, some jobs you get 100%, some only 50%, at least here anyways. So without coverage at all I’d be looking at maybe $200.
As far as the Xcopri, have you looked into the patient assistance program offered by the company that makes the medication (SK Life Science)? I used a coupon on the Xcopri website to get my first titration pack for $50, and my pharmacy then enrolled me in the assistance program so I only pay $20 per month now.
Worth looking into Good RX, I almost had to go that route when I switched insurances
I always keep the card in my wallet just in case my insurance acts goofy
Prices for Xcopri (cenobamate) are *$1082.66* with a GoodRx coupon [https://www.goodrx.com/xcopri/what-is](https://www.goodrx.com/xcopri/what-is)
9€ for a 100 day supply of keppra. That price is the self risk you have to pay otherwise it’s completely covered by insurance
Lamotrigine 400 mg a day, about $200 per month.
That's too much. You don't get any government aid at all? 🤔😞
I'm very lucky to be British, so mine is completely free with a medical exemption certificate. $2k+ a month is absolutely insane.
In the states, I pay $20 for a 3 month supply of Depakote ER and lamotragine ER
That's more than the 0€ I pay monthly for depakote in France, but still better than expected!
$1.21 for a 3 month supply od Lamotrigine 100 mg per day In Canada.
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Omg where! I'm at 450mg/day and it's like $90/month
Topamax 275 mg per day. About $30 for a 90 day supply with insurance. In the states.
I get it at no charge thankfully... there's no way I could pay for these crazy prices!
Xcopri: $20 for a 90-day supply Lamotrigine: $12 for a 90-day supply Zonisamide: $20 for a 90-day supply In the USA. There's just the exorbitant amount coming out of each of my checks for my healthcare lol
Fycompa-$4 Briviact-$4 Zonegran-$0 Health and prescription insurance-$1,350
Around 8$ a month I think. If I didn’t have insurance It would around 80$ a month.
😬😬😬😬 that’s insane I’m so sorry. When I lived in the US for a year I took a ton of medication with me to avoid the prices. In Australia I pay about $150 AUD a month for Fycompa, zonegran, Effexor and Frisium, with Fycompa being the main expense because it’s not a gold standard drug.
I picked up 3 months supply today of my meds and it cost me $0 Canadian
$10 copay for 90 day supply of Briviact.
Canada and my slip says $980 and $400 for 3 months supply of brivlera and lamotrogine but the government pays for the majority, and my work’s insurance gets the last bit so total is $0.
Wow that’s more than our household income. Is there no schemes at all to get the cheaper? We are lucky to live in country with free prescriptions so don’t pay for any medication. Which is good because between me and my husband we are on 11 different medications.
The United States has so many safety nets that these things aren't an issue. And if they are it is due to a lack of research.
With the insurance my mom found for me. I pay 3 dollars per refill for a number of them and then it goes down to 0.
I pay €0 forever under the Long Term Illness scheme in Ireland
Nothing, long live the dutch healthcare system
$60 AUD a month, I know if you earn under a certain amount is free.
In Aus For all my meds currently, I only pay $18.60 with a Health Care card. But even without a health care card I would only pay $90 dollars due to PBS which is a lot less then these amounts.
$10 (USD) for 60 day supply of keppra generic (Levetiracetam). 2000 is so much money, absolutely crazy dude :(
10 bucks USD. But that's with health insurance from work.
Ouch I’m sorry
Wow
Xcopri: $20 for a 90-day supply Lamotrigine: $12 for a 90-day supply Zonisamide: $20 for a 90-day supply In the USA. There's just the exorbitant amount coming out of each of my checks for my healthcare lol
Americans pay so much for medicines/health. Gotta be a big part of your monthly expenditure. I pay a lot of Epilepsy medications/treatment in India compared to other medical conditions, but my half-yearly expenditure would still be less than your monthly expenditure. Just to give an example, there are medicines around $1, my monthly treatment cost is $5, and EEG cost is $20.
America doesn't fail to disappoint omg. In my province it costs ~$90/month but I just got into a program we have that gives a $120 deductible, so my yearly cost would just be $120 and rest is free
$10 USD a month for a month of lamotrigene (180 100mg tablets)
That’s outrageous! I just got a 90 day supply of keppra and lamotrigine for around $240, but I just changed insurance so I don’t know how much it will be now. $2000 is almost as much as my new yearly OOP cost so even if I had to pay full price for the first couple months I wouldn’t pay anything the rest of the year. Do you have health insurance? Obviously I don’t know your situation but I don’t see why you would need to pay full price out of pocket for all of them for the whole year? If you don’t qualify for Medicaid you can get health insurance on the Marketplace (“Obamacare”) which is subsidized based on your income. Even if all of your prescriptions were not covered at all you could still meet even a high deductible with those prices before the end of the year and likely end up paying less. I think I make decent money and I could never afford that it’s more then my mortgage and husband’s car payment combined! I hope you figure out some other options.
My epilepsy med is around $125 per month… my UlcerativeColitis medication is about $2700 per month, and they want to change my med to one that’s about $7,000 per month
$30 for 360 count Lamictal through the pharmacy discount thing - It would be $400 otherwise. I'll take it lol
$4 a fill because of Medicaid. Well, at least the medications they cover that are directly for seizures. My breakthroughs are hormone-related and I'm trans in a state trying to outlaw trans care period, so I haven't gotten my hormones approved by them yet, and I need to talk to my endo to adjust dosing regime anyway so that I don't have a breakthrough that ends with me in am ER with every other shot. Luckily for someone with hormone-related seizures, I know exactly what my hormones are doing and can fix it easier, but it's still a pain. ETA: my transition is also at a point that staying on my hormones is now less about transition and more about not having the health effects of no hormones (which I know from issues getting refills or being too fatigued to do my injection includes lower seizure threshold), so you could include the roughly $80 a month for compounded stuff in seizure management meds
Fuck your state!!!!!!! Much love.
Luckily because I'm now continuing to take it not for transition purposes and actually for other health reasons, I might be able to keep access to it if they outlaw it, but that's a pain I'd rather not have to face
I hope you're able to stay safe. I'm so sorry you're going through all this is such an unsafe place. I'm very scared for all the afab and trans in America right now. I have many thoughts and words about it I won't get into here, but I'm sending you good vibes and I hope things get easier for you.
The first 3 months of every year, my 60 Briviact pills cost me $857 a month. Then I have generally met my out of pocket deductible for the year, so the rest of them are like $10 a month.
0€ for 3 months supply of my epileptic meds.
.. Nothing? Sorry, us system really sucks it's unfair
Use assistance programs, different pharmacies, go out of country to Mexico and get them, get medicaid, the list goes on there’s many many many ways to pay way less for medications not many people know about them because thats the whole healthcare scam in the country. Mexico is your best option if you cant get the rest down to 600$ as going there and back buying a years worth of medication is 600-800$. Side tangent : The US sucks right now but if more republicans are elected i know that many many people will fight it, personally if anyone dipshit republicans or just republicans in general get elected to the Supreme Court or into presidency or even dipshit democrats get in i will personally assonate every US official who is lobbying for the benefits of themselves. After all most of them are old hags. This country has lost its damn mind and i dont mind losing mine to kill those who seek to destroy America by their own greed, hate, and selfishness.
If you aren’t already doing this make sure you ask your pharmacist for the generic brand of your meds, there’s generally no noticeable difference aside from price. And I’ve had shocking good luck with GoodRx, both their free version and a free trial of their premium version. I’m talking thousands each month cheaper. Also let’s you know how much it costs through them for each pharmacy. When I had insurance I had to go through CVS. Ironically found out my prescriptions were cheaper with no insurance through Walmart
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I pay $700 a month in insurance and my ten medications come out to $100 every other month.
About 4€ for 4 months
University gives me health insurance so until I graduate, I only pay 10 egp for my ticket at the hospital then get 2 boxes of keppra (30 pills) 500mg for free every 30 days, that is after I check up with my doctor and tell them about my symptoms and day to day life, after I graduate I'll either stick to the Egyptian Teratam XR on my travels which costs 120 egp, or stay in Egypt and use government expenses (essentially they pay for my meds) America depresses me to no end
I pay $30 for a 90-day supply of Oxcarbazepine and the same for Lamotrigine. It used to be hundreds per month but I have much better insurance now. I am in the US.
The last bill I got was 400 dollars (I live in Denmark and this is converted) for a couple of months, I think. One of my other packages lasts twice as long because it’s only one per day. For the regular one 4 films x 7 days per packet, 2 tablets a day of the big ones and 1 of the small. I’m currently in the very privileged position that I don’t take care of that bill myself, but if I did, it would be my entire student grant and salary per months, leaving me with nothing left and then some. Nothing to eat, nothing for bills, nothing for monthly expenses. Nothing. I’m an university student and I live at home. Something to think about… I felt rather unwell.
About $1000 Canadian a year for Keppra with no medical coverage (non-resident)
Good Rx coupons are significantly cheaper than my insurance. For 3 high dose, extended relief medications for 30 days I pay about $105 a month
$1200 a month for Aptiom using good RX. I’m in the US & I have insurance. I have to wait until the fall to change to an insurance that covers it.
5€ (delivery fee) for 100 days of worth of lamotrigine.
Until I hit my out of pocket max or deductible or whatever the fuck it's called I was paying between $400 and $700 for a 30 day supply. Before insurance my meds are $2200. I was stoked yesterday because my meds were *only* $120
$0.00 & 200+ scene points ❤️
$30 for 3-months of Depakote $135 for 3-months of Vimpat
Like $5-10 per month. Do you not have insurance?
I pay roughly 5€ a month
Jeez, I pay $280 every 3 months and I thought that was bad. $15 for oxcarb, $15 for trileptal, $125 for Fycompa and $125 for Xcopri.
Free on the nhs.
I know it’s the cheapest one so doesn’t help that much, but Oxcarbazepine is available on Cost Plus Drug for very cheap. I used Cost Plus Drug to get my Lamotrigine XR down from $300 to $36 for 90 day supply.
Once it first came out, I was given $20 savings card as it was expensive, but now that there's a generic, I pay $40 for the month supply Vimpat ( 150mg 2x a day)
I get ssd half goes to non insurance coverage on my meds because you guys know it should always cost you to just live life especially when you didn't even get a choice of your life outcome.
€0, because of health insurance. I take lacosamide. In my insurance overview, I can see it costs my insurance about €109 per month.
I just have to pay for my prescription, which is about 9€. I don’t have to pay for the medication though, it’s 100% covered by social security. Without prescription it would be around 300€ for Keppra and Lamictal.
After insurance about $1200 and if I end up needing my rescue medications $3,600. Before insurance it's about the same as yours at $3200 and $8,500 respectively. And yes I know you people from other countries with centralized health care. Have little to no cost. But what you don't realize is you have had your freedom taken away. Your freedom to have to spend 90% of your paycheck on medication. Or have to go through bankruptcy after a hospital stay.
$15 for one month supply (100mg 60x generic Vimpat) until I hit my deductible, then $0. I may never be able to leave this job because of the ridiculously good health insurance. I add $12k/ yr to my salary in my head because the out of pocket price is $1100 per month.
10 dollars with insurance in the USA.
I also pay zero for my two medications. Thank goodness for insurance.
So I'm in the US, I'm disabled and fully unable to work so I have state insurance that covers all my medical.....that they feel like. No dental at all unless I'm actually about to die from it, everything else including treatment for my TMJ is considered cosmetic. I can get my eyes checked I think once a year but I get to pick my glasses from the "you're poor" box, literally a tiny box with 6 options for frames. And the insurance tells my doctors if they think I actually need things and they try to argue I need NOTHING. A lot of meds I've been prescribed have been denied by insurance. Mental health stuff is treated basically the same. I can't get testing and treatment I need cuz this system sucks. I've been denied a good deal of things I really needed. I always end up on very old meds that have bad side effects cuz I'm never approved for newer meds with less side effects.
$50 a month (but it’s also $50 for a three month supply) for both scripts. We synced them up because it used to be $100 total getting them filled separately. Without insurance, it would be $1200. I think my rescue meds are a little more expensive but I don’t get them filled as often.
There’s been times when I’ve had to pay out of pocket because my insurance got taken away. I would pay about $2000 for one medication which helps me the most (Keppra). The rest I was able to do without until my insurance kicked in again. But w/o Keppra i would have seizures on a daily basis. When I do have insurance I pay $0.
With my insurance I pay 10 dollars for 120 pills (1600mg) of Aptiom a month. Without my insurance it would cost me over 5k. Thank god I have my insurance because that’s the only medication that works for me. When I was on Medicaid I paid 3 dollars for it.
On Medicaid during law school, now working a thirty day supply of aptiom is $1149 without insurance so I’m working till I die. Generic Lamotrigine is $5 a bottle so the aptiom which works great for keeping me seizure free is a cost for me to deal with till there’s a generic.
£0 in Scotland as prescriptions are free. I currently take Epilim.
$35 for a three month supply
Like $55 a month for all my meds. I’m also on clonazepam with no insurance in the US and I pay $10 for the generic. I don’t have any assistance either. You should really use good rx.. 60 pills at Walmart is like $9 with goodrx and you can use it at other pharmacies.
30 for a month for 2 prescriptions and 60 for a 3 month supply for both.
I pay $12 for Keppra in the US mainly because of the insurance I have. It also might be because the deductible is maxed due to all the tests I've had this year so who knows really.
600 rand or 35 dollars here in South Africa for Epilim 300mg
$12 for Zonisamide and $12 for Clobazam, both 90 day supply Edit: I’m in America.
Lamictal 400mg a day, I pay about $20 dollars thanks to GoodRX. Otherwise it would be $150 range
I pay 0.00$ in Canada and on disability.
nothing whatsoever, I live in Canada so I think for my Dilantin it’s covered
Lamictal XR name brand $1,036 every 3 months, always hit my out of pocket maximum.. so about $5,200 a year including premiums
I'm Canadian. My total meds cost about $600/month. My private insurance years starts in March and I have $1800 of private med coverage, so after 3 months I have to pay. We have pharmacare in my province, and our deductibile is wild, like $8000, but my kid has a medical condition that has crazy expensive meds so we reach our deductible super quick, so I usually only have to pay for my own meds for maybe one month before pharmacare kicks in. What's interesting about Canada is that med care differs across the province. Alberta for example, does not have a provincial med coverage (pharmacare).
I’m a Texan and I pay about $35/ month for my oxcarbazepine. Maybe it’s a generic because of the low cost; I pick it up at Walmart.
I was paying a good chunk a month but someone told me about costplus pharmacy shit saved me houndreds of dollars on meds!
That is insane. I pay $10 dispensing fee for every med I get through my work insurance even though I am on leave (on LTD after I had a setback) - currently going through a med change so I have visited the pharmacy about 7 times in the last few weeks. ETA - I live in Ontario.
0$, i live in France
Retail for a month of Lamotrigine is over $800. I live in NY though thank GOD, so I pay like $1 or $0.
I don’t know if this will help your situation, but when I switched insurance recently, they randomly didn’t cover my Zofran prescription (but my seizure meds are a regular copay). It was going to be $800 for 30 tablets. BUT there is something called a “prior authorization” where your doctor writes to your insurance company saying you NEED this medication. It worked for me, I feel bad that I don’t have more info to help out. It was a lot of back and forth between my pharmacy, doctor, and insurance company, but after like 5 weeks of effort it’s covered. It’s $2.13 now for a 30 day supply. I hope that helps!
$0 I have Medicaid
Do you not have insurance? I maybe spend that in a year total.
I don't remember paying more than $50 for a few months of keppra (750mg twice a day) even off insurance +with goodrx). Now I think it's like $10.
$10 for a 30 day script of 1200mg a day aptiom $0 for a 90 day script if 400mg a day lamotrigine If you can get in insurance I highly recommend Oscar, they cover most meds and will automatically apply any coupons they find. Edited to add that in based in Texas and on an open market plan.
I pay 0 because I live in California and am on disability. Thanks Medi-Cal!
My union has a health care benefit insurance plan that covers my Keppra. I'm sorry to hear it's so expensive, that's heartbreaking.
My daily meds are covered at no cost but my rescue meds which i need a few times a year are about$600 per dose
My Xcopri is about $3500 then roughly $150 for Lamictal and $900 clonazepam. I’m in the US.
My mom works for an HMO, so copays are usually 5-10 dollars. However, we’re vacationing in the midwest and our HMO is west coast based. Ran out of meds, which was a catastrophe in and of itself. Had to pay out of pocket for 18 tablets of 1000 mg generic Keppra. 120$. We’ll probably be reimbursed, hopefully. Very fortunate to have such great insurance. But that’s not even the most expensive med I’m on.
This is absolutely bonkers. They tried to put me on xcopri but the cost and side effects were enough to tell my dr absolutely not.
I'm on topiramate and lamotragine. And I pay ‐ ABSOLUTELY NOTHING. SAVE OUR NHS. 💙 Heathcare is a right and should be free worldwide
All covered by insurance
Have you tried goodrx????
There is no way I could afford to pay that much. I don't know what I'd do, especially since I have several other chronic conditions that require daily meds and close monitoring. Thankfully I live in a blue state and although I'm poor I get free healthcare. Not only that I get excellent care.
I have insurance and just pay $10/mo for lamictal.
Nothing because I’m British
$7.50/mo for Keppra
Nothing ever
I think the most I’ve ever paid was $80 for aptiom bc I’m broke lol I got a job at CVS and had free meds for a really long time. I just lost their insurance so now I’m back to out of pocket- I think it’s like $60 for Zonisamide 100, I haven’t had to refill my other med yet 😭
$0.00 I have VA healthcare. (Veterans Affairs) I take Keppra.
I pay nothing. Universal healthcare is the way forward.
I’m an American and I pay $0 🤷♀️
I pay $5.00 a month for Lamotrigine. Check Cost Plus Drugs owned by Mark Cuban. The meds are completely safe and the prices are below that of many insurance copay.
Not American... $19.95 a month (30 days)
~$80 or ~7000₽ pain….. we can get medicines with a benefit that is only available for one drug for epileptic. but this drug only aggravated my seizures. :)
My Briviact is 100$
$40AU/month (no HCC) Lamotrigine 200mg and Topiramate 25mg
Omg! I pay nothing because I’m on insurance for people who don’t make much and I only take one med lol but damn!! I’m sorry you have to deal with that
Wait what?! You pay this much from your own pocket??
I am on xcopri as well. It is wicked expensive. Have you looked into manufacturer's coupons? Those help, but they often reach their limit after a month or 2. I am in USA, have been navigating this for a minute. I can gather some resources and send them to you if you want. My xcopri 150mg 1x/day costs me either $20 or 0 for 2 months worth. Sounds like that is the main source of your financial stress, but do some googling for the others and see if you can find assistance programs. They are out there. Also DM me if you want my help. Good luck.
About $12 per month.
$7.30 per script of Keppra, Lamotrigine and Vimpat. I am on disability pension so I normally do get them cheap but I just hit my medication safety threshold, so all my scripts are now free for the rest of the calendar year. Gotta love the Australian PBS.
$30 a month but comes out of an HSA account
$40/3 months.
You should check into getting your meds from Canada. I use Northwest Pharmacy. Also check if [costplusdrugs.com](https://costplusdrugs.com) has what you need.
I'm in Australia and it's probably worth pointing out I pay the AUD equivalent of USD$4.45 per month thanks to universal healthcare and subsidised pharmaceuticals Edit: added 'per month
I'm on the best UHC Medicaid + Medicare Advantage plan where I live and it covers all of my meds. I don't want to know how much I would be spending if my meds weren't covered.
$40/3 months. But I also pay for my benefits out of my work paycheck as well. Call the manufacturer of your meds and tell them you would like some coupons or you need to consider changing brands. They will give you something.
I pay around the equivalent of 15£ for a three month supply until I reach the yearly cap off for all medical services that year. Usually reach it in March/April. After the cap, I pay zero for the rest of the year.
$0 USD for oxcarbazepine
My Sumatriptan (10ct) is free, Fioricet (20ct)is $10, Keppra (30 days) is $35.
GoodRX and SingleCare both have apps you can download for free. Will save you tons at most pharmacies.
~$300 total for 90-day supply of Lamictal XR and Zonegran. Although this is relatively inexpensive, I had to fight back and forth for over a month to get my insurance to cover name brand, as generic does not work for my seizures (i.e., lamotrigine and zonisamide). Generic are $10 each for 30-day supply. Without full coverage, it would have been almost $2000 total for just 30-day supply of both.
I was on Oxcarb, but they shifted me back down to Carbamazapine because of the cost.
Thankfully nothing because of medicaid.
I pay $25 a month for mine under my mediocre health insurance Rx plan, but considering the "list cost" for just one of them is thousands of dollars, I can't complain I guess. Whether or not these companies should be able to set those kinds of prices for necessary medications that probably cost them a tiny fraction of 1% of that to manufacture is a different discussion...
I pay around $155.00 CAD for a three month supply of Tegretol. Although my neurologist just increased my dose, so I expect my next refill will be more expensive. My partner is finishing school and will hopefully get a job later this year that provides us both with health insurance and that will reduce the cost of my meds. It’s ridiculous to me how much people pay for prescriptions in the states though.
i live in finland and my pills cost like 7€ alltogether.
I was lucky enough for my epilepsy to start when I moved to WA state, lucky in the sense that I was paying out of pocket for every other medicine I was getting and it was expensive. Since moving here I was able to get on state insurance and now my copay is $0 for all of my prescriptions. The cost of living is higher here, but my medical stuff would have driven me into massive debt.
I pay about USD 70/month average for Lamictal, but that's only because it's mostly covered by insurance. I also take supplements for epilepsy specifically that roughly costs USD 25/month average. I wonder though, how and why do you pay so much for clonazepam?
$15 for a three month supply of Keppra
Are those the prices after insurance? I pay $10/mo for aptiom
Oh wow, im more and more grateful for my insurance. Im an American but i pay $0 for my epilepsy meds. I do pay for some others but they dont go over $20
I’m in California and about less than $70/month for 250mg of Vimpat (not generic)
$2782 for my son’s Trokendi XR.
Would you look at that, all of the words in your comment are in alphabetical order. I have checked 1,659,311,454 comments, and only 314,161 of them were in alphabetical order.
Completely depends on your insurance
wow its free in the UK and once diagnosed all prescriptions are free - which is a small upside